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00:00:01>> LADIES AND GENTLEMEN, GOOD
MORNING.
00:00:04I WOULD LIKE TO SAY WELCOME TO
ALL OF YOU AND TO OUR
00:00:07DISTINGUISHED VISITORS IN THE
AUDIENCE.
00:00:10THANK YOU FOR JOINING US FOR OUR
RECOGNITION OF TRAUMATIC BRAIN
00:00:14INJURY AWARENESS DAY.
MY NAME IS MIKE MCKINNEY.
00:00:17I WILL BE THE MODERATOR FOR OUR
PANEL DISCUSSION TODAY.
00:00:20NORMALLY MY JOB AS DIRECTOR OF
COMMUNICATIONS FOR THE OHIO
00:00:25DEPARTMENT OF VETERANS SERVICES.
OUR MISSION IS TO FIND VETERANS
00:00:29AND CONNECTED TO THE BENEFITS
THEY HAVE CURRENT AND DESERVE.
00:00:32IF THE CONNECTION IS MADE THE
COUNTY VETERANS SERVICE OFFICE
00:00:35IN EACH OF OUR 88 COUNTIES.
ANY BETTER IN THE KNEES TO FIND
00:00:39A COUNTY OFFICE THAT IS CLOSEST
TO THEM -- ANY VETERAN THAT
00:00:44NEEDS TO FIND THE COUNTY OFFICE
THAT IS CLOSEST TO THEM CAN
00:00:48VISIT OUR WEB SITE OR CALL 1-
877-OHIOVET.
00:00:58I WOULD LIKE TO RECOGNIZES SOME
OF OUR DISTINGUISHED VISITORS
00:01:03THERE WITH US TODAY.
WE WOULD LIKE TO SAY HELLO TO
00:01:08MR. BEND FAMOUS, WHO IS
REPRESENTING -- BEN FAMOUS, WHO
00:01:17WAS REPRESENTING SHERROD BROWN.
ALSO, DICK, REPRESENTING MY
00:01:30DEWINE.
-- MIKE DEWINE, AND DR. GORDON,
00:01:41A DISTINGUISHED DOCTOR AND BRAIN
INJURIES, AND ALSO MR. PETE
00:01:47MILLER, OF THE PATRIOTS GUARD
RIDERS.
00:01:50ANYONE HAS EVER BEEN TO OUR
EVENTS, OR TO ANY MILITARY
00:01:56OFFICIALS HAVE SEEN THEIR HATRED
GUARD RIDERS -- MILITARY
00:02:01FUNERALS HAVE SEEN THE PATRIOT
GUARD RIDERS.
00:02:05BEFORE WE BEGIN TODAY'S
DISCUSSION, I WOULD LIKE TO
00:02:10INTRODUCE A DISTINGUISHED PERSON
TO PROVIDE OPENING REMARKS.
00:02:14HIS A MARINE CORPS VETERAN OF
THE IRAQ WAR AND IS THE
00:02:19ASSISTANT DIRECTOR OF THE OHIO
DEPARTMENT OF VETERANS SERVICES.
00:02:23PLEASE WELCOME JASON DOMINGUEZ.
[APPLAUSE]
00:02:29>> THANK YOU FOR BEING HERE
TODAY.
00:02:34I WANT TO THANK OUR PANELISTS
FOR TAKING TIME TO SHARE IN
00:02:38THEIR EXPERIENCE AND EDUCATING
US ON WHAT TODAY IS ALL ABOUT.
00:02:40I WANTED TO THANK SENATOR
BALDERSON FOR HIS COMMITMENT AND
00:02:51GUIDING THE OHIO LEGISLATURE TO
CREATING THIS DAY.
00:02:54WE HAVE SO MANY VETERANS BACK
FROM IRAQ AND AFGHANISTAN WHO
00:02:59HAVE SUFFERED THIS SIGNATURE
WOUND OF THESE WARS.
00:03:03A NUMBER OF THE GUYS THAT I'VE
SERVED WITH HAVE SUFFERED FROM
00:03:06TRAUMATIC BRAIN INJURY AS WELL
IN MY UNIT.
00:03:09THERE WERE 59 PURPLEHEART.
MANY OF THESE GUYS SUFFER FROM
00:03:15PHYSICAL WOUNDS AS WELL AS
PSYCHOLOGICAL.
00:03:17EVEN THOUGH YOU MIGHT NOT BE
ABLE TO SEE SOME OF THE SCARS, A
00:03:22GERMANIC BRAIN INJURY CAN
SEVERELY IMPACT SOMEONE'S LIFE
00:03:27AND THEIR DAY-TO-DAY LIVING --
TRAUMATIC BRAIN INJURY CAN TO
00:03:32REALLY IMPACT SOMEONE'S LIFE AND
THEIR DAY-TO-DAY LIVING.
00:03:35I SAW COLONEL MIKE, WHO LOOKING
TO MAKE OHIO STATE THE BEST
00:03:43VETERAN-FRIENDLY PLACE THAT IT
COULD BE.
00:03:45COLONEL, HOW MANY STUDENT-
VETERANS ARE AT OHIO STATE?
00:03:51[UNINTELLIGIBLE]
THAT IS INCREDIBLE.
00:03:55THE NUMBER KEEPS GOING UP.
WE ARE SO FORTUNATE TO HAVE THE
00:04:00POST-9/11 GI BILL.
I LOVE THE OHIO STATE SO MUCH
00:04:04THAT I WHEN BACK PLACE.
THAT IS -- I WENT BACK TWICE.
00:04:11THAT IS INCREDIBLE.
I KNOW YOU HAVE YOUR WORK CUT
00:04:13OUT FOR YOU BECAUSE I'M SURE A
NUMBER OF THOSE STUDENTS HAVE
00:04:17ADJUSTMENT ISSUES AND ISSUES
WITH TRAUMATIC BRAIN INJURIES
00:04:22AND ARE TRYING TO FIT THAT INTO
THEIR NEW NORMAL, WHERE THEY
00:04:25ARE AT.
THANK YOU FOR BEING WITH US
00:04:28TODAY AND CONTINUING TO SERVE
BEYOND YOURSELF.
00:04:31COLONEL, I OFTEN TELL THE STORY,
AND SOME OF YOU MIGHT HAVE HEARD
00:04:36IT BEFORE, BUT THE COLONEL TELLS
A STORY ABOUT AN INDIVIDUAL THAT
00:04:41HE SERVED WITH THAT WAS HIS CELL
MATE.
00:04:46HIS NAME WAS MYRON.
IT RELATE AND BODIES TO ME
00:05:10>> THEY DRAGGED HIM OUT OF HIS
CELL AND BEAT HIM AND ORDERED
00:05:18HIM FOUR DAYS AND HE
BASICALLY BEGAN TO DIE.
00:05:22HIS CELL MATE, WHO WAS FADING
AWAY FROM DYSENTERY AT THE TIME
00:05:34, AS THEY WERE SITTING THERE AND
STARVING AND FREEZING TO OTHER
00:05:38-- MYROND SAID THAT WE ONLY
GET ONE PIECE OF BREAD A DAY,
00:05:48BUT I WOULD DEVOTE MY PIECE OF
FOOD SO YOU CAN HAVE IT BECAUSE
00:05:51YOU NEEDED MORE THAN I DO.
HE CHOSE AT THAT MOMENT TO SERVE
00:05:56BEYOND HIMSELF.
THAT IS SUCH A HARD THING TO DO,
00:06:00ESPECIALLY IN THAT KIND OF
ENVIRONMENT.
00:06:03THE MEN AND WOMEN OF OUR ARMED
FORCES SO AND BODY -- EMBODY
00:06:11THAT TRADITION OF SERVING IN THE
ON THE THEMSELVES.
00:06:14WE SEE IT EVERY DAY.
OUR VETERANS' SERVICE
00:06:17ORGANIZATIONS, THE WONDERFUL
WORK THEY DO, AND THE DOCTORS
00:06:21WHO HAVE COMMITTED THEIR LIVES
TO STUDYING TRAUMATIC BRAIN
00:06:23INJURY, AND WHO AT THIS POINT
-- THIS HAS BECOME THE SIGNATURE
00:06:30WOUND OF THIS WAR -- I AM SURE
THIS IS A FOCUS FOR THEM.
00:06:35WE SERVE BEYOND OURSELVES, AND I
ENCOURAGE YOU TO DO THAT IN YOUR
00:06:39EVERYDAY LIFE.
THAT IS THE BEST THING YOU CAN
00:06:43DO, TO TAKE THAT TRADITION AND
EXAMPLE THEY HAVE MADE IN THEIR
00:06:46LIVES AND TOUCH SOMEONE IN YOUR
COMMUNITY.
00:06:50THANKS FOR BEING HERE TODAY.
WE APPRECIATE EVERYTHING YOU DO,
00:06:54YOUR TIME, AND I LOOK FORWARD TO
HEARING THE ANSWERS TO THESE
00:06:56QUESTIONS.
GOD BLESS YOU.
00:06:59[APPLAUSE]
>> JASON, THANK YOU FOR THOSE
00:07:07VERY INSPIRING WORDS.
THAT WAS GREAT.
00:07:09OUR PURPOSE TODAY IS TO SHINE A
LIGHT ON TRAUMATIC BRAIN INJURY,
00:07:16TBI.
IT HAS AFFECTED VETERANS OF ALL
00:07:20OUR WARS, BUT IT HAS GAINED
PUBLICITY IN RECENT YEARS.
00:07:24AS JASON TOLD US, THE SIGNATURE
WOUND OF OUR WARS IN IRAQ AND
00:07:29AFGHANISTAN.
NEARLY 20% OF THE VETERANS AND
00:07:34MEDICAL FACILITIES IN OHIO FROM
2011 HAD A POSITIVE INITIAL
00:07:38SCREEN.
OF THOSE, OVER 55% HAD A TBI
00:07:52DIAGNOSIS CONFIRMED.
TBI IS A THREAT TO OUR GENERAL
00:07:56COMMUNITY, PUBLIC HEALTH.
IT IS A THREAT TO THOSE WHO PLAY
00:08:00COMPETITIVE SPORTS, THOSE IN A
SERIES MOTOR VEHICLE ACCIDENT,
00:08:03OR AN ACCIDENT OR TRAUMA TO THE
HEAD IS SUFFERING.
00:08:05TBI ACCOUNTED FOR MORE THAN 30%
OF ALL TRAUMA CASES IN OHIO FROM
00:08:152007 TO 2009.
WE ARE FORTUNATE TODAY TO HAVE
00:08:26WITH US A DISTINGUISHED PANEL
THAT WILL DISCUSS THE CAUSES,
00:08:31STRATEGIES FOR DEALING WITH TBI
FROM A PERSONAL AS WELL AS
00:08:37MEDICAL PERSPECTIVE.
SEATED ON THIS SIDE OF THE ROOM
00:08:41TO MY RIGHT HERE IS OUR PANEL
OF SURVIVORS OF TRAUMATIC BRAIN
00:08:47INJURY.
ON THE FAR LEFT IS CHARLIE
00:08:52MORRIS.
HE IS A VETERAN OF THE VIETNAM
00:08:56WAR WHO WAS WOUNDED BY SMALL
ARMS FIRE IN 1971 WHILE SERVING
00:09:00AS A HELICOPTER CREWMAN.
HE IS A SURVIVOR OF TBI AND
00:09:06POSTTRAUMATIC STRESS DISORDER,
WHO, OVER TIME, HAS LEARNED TO
00:09:10COPE WITH HIS INJURIES.
HE LATER EARNED A DEGREE IN
00:09:13EDUCATION AND BECAME A HIGH
SCHOOL TEACHER.
00:09:16HE IS AN AUTHOR AND ADVOCATE FOR
VETERANS AND OTHERS WITH BRAIN
00:09:19INJURIES.
PLEASE WELCOME A CHARLIE MORRIS.
00:09:22[APPLAUSE]
C TO 1 OVER FROM CHARLIE IS
00:09:36MATTHEW DRAKE.
HE IS A VETERAN OF THE IRAQ WAR
00:09:41AND SURVIVED A CAR BOMBING THAT
TOOK THE LIVES OF OTHERS.
00:09:44SHE ENDURED MONTHS OF
HOSPITALIZATION AND YEARS OF
00:09:50THERAPY AND RELEARNING LIFE
SKILLS.
00:09:53HE WORKS, HE ENJOYS TIME WITH
HIS FRIENDS, AND THIS YEAR IN
00:09:57MAY, HE EVEN PARTICIPATED IN
"DANCING WITH THE MILITARY
00:10:03STARS" IN TOLEDO.
WELL, MATTHEW DRAKE AND LISA
00:10:13SCHUSTER.
[APPLAUSE]
00:10:14PAM HAYS IS A TBI SURVIVOR AS A
RESULT OF A MOTORCYCLE ACCIDENT.
00:10:23SHE WORKS WITH OTHER SURVIVORS
AS A COUNSELOR.
00:10:27FOLLOWING HER OWN JOURNEY TO
RECOVERY, SHE BECAME THE FOUNDER
00:10:31AND PRESIDENT OF THE ARMED
FORCES, WHICH PROVIDES
00:10:34CONSISTENT, EASY ACCESS, AND
INSPIRING SUPPORT TO VISIT THE
00:10:40WOUNDED WARRIORS AND THEIR
FAMILIES.
00:10:41SHE IS AN EXPERT PRESENTER ON
THESE TOPICS.
00:10:46PLEASE WELCOME PAM HAYS.
[APPLAUSE]
00:10:53TO HER LEFT IS SAM NESSER.
SHE WAS A PROMISING ATHLETE IN
00:11:072004, UNTIL SUFFERING A HEAD
INJURY WHILE GOING FOR A
00:11:11REBOUND.
HER INJURY THAT TO SEVERAL OTHER
00:11:13DISORDERS, A LONG PERIOD OF THE
THERAPY, AND DELAYED HER
00:11:17EDUCATION.
TODAY SHE IS A HIGH-SCHOOL
00:11:19GRADUATE AND AN ADVOCATE WHO HAS
TESTIFIED BEFORE THE OHIO HOUSE
00:11:23OF REPRESENTATIVES IN SUPPORT OF
LEGISLATION TO HELP THOSE WITH
00:11:25BRAIN INJURIES.
WITH SAM TODAY IS HER CONSTANT
00:11:31COMPANION, LINUS, WHO IS BETTER
BEHAVED THAN THE DOGS IN THE
00:11:36MCKEINNEY HOUSEHOLD.
[LAUGHTER]
00:11:43PLEASE WELCOME SAM NESSER.
[APPLAUSE]
00:11:47TO OUR LEFT IS OUR PANEL OF
MEDICAL PROFESSIONALS.
00:11:52DR. JENNIFER BROGNER AND AN
UNDERGRADUATE DEGREE FROM THE
00:12:02UNIVERSITY OF MARYLAND AND
GRADUATE DEGREES IN PSYCHOLOGY
00:12:05FROM OHIO STATE UNIVERSITY.
SHE IS THE VICE CHAIR FOR
00:12:10RESEARCH IN THE DEPARTMENT OF
PHYSICAL MEDICINE AND
00:12:13REHABILITATION AT THE OHIO STATE
UNIVERSITY WEXNER MEDICAL
00:12:18CENTER.
SHE HAS SPENT MORE THAN 20 YEARS
00:12:21PROVIDING SERVICES AND
CONDUCTING RESEARCH ON THE
00:12:24CONSEQUENCES OF TRAUMATIC BRAIN
INJURY.
00:12:26PLEASE WELCOME DR. BOGNER.
[APPLAUSE]
00:12:30TO DR. BOGNER'S LEFT HIS DOCTOR
MEHR SIDDIQUI, THE CHIEF
00:12:42NEUROLOGIST AT CHALMERS P. WYLIE
VA AND THE TRICARE CENTER.
00:12:49DR. SIDDIQUI GRADUATED FROM NEW
YORK MEDICAL COLLEGE AND PERFORM
00:12:57HER RESIDENCY IN DALLAS, TEXAS.
SHE HAS ALSO BEEN AN INSTRUCTOR
00:13:01AT VARIOUS HOSPITALS THROUGHOUT
HER CAREER.
00:13:02DR. SIDDIQUI HAS BEEN ATTENDING
TO THE NEUROLOGICAL CARE OF
00:13:08CENTRAL OHIO'S FRIENDS FOR MORE
THAN 30 YEARS.
00:13:11PLEASE WELCOME DR. SIDDIQUI.
[APPLAUSE]
00:13:14OUR FINAL PANELIST THIS
STEPHANIE RAMSEY.
00:13:18SHE IS A TRAINED NURSE WITH A
WEALTH OF EXPERIENCE AND
00:13:22DISABILITY PROGRAMS AND WORKERS'
COMPENSATION WITH WORK IN BOTH
00:13:26THE PUBLIC AND PRIVATE SECTORS.
SHE EARNED EIGHT BACHELOR OF
00:13:32SCIENCE AND NURSING DEGREE AND A
DEGREE IN PUBLIC POLICY FROM
00:13:39THE UNIVERSITY OF PITTSBURGH.
SHE SERVES ON THE BOARD OF
00:13:41TRUSTEES OF THE BRAIN INJURY
ASSOCIATION OF OHIO, AND HAS
00:13:45SPOKEN EXTENSIVELY ON THIS
TOPIC.
00:13:46PLEASE WELCOME STEPHANIE RAMSEY.
[APPLAUSE]
00:13:51WE HAVE A NUMBER OF QUESTIONS
FOR OUR PANELISTS TO ADDRESS.
00:13:56MOST WILL BE DIRECTED EITHER TO
THE SURVIVORS SPECIFICALLY WHICH
00:14:01OF THE MEDICAL PROFESSIONALS.
IF TIME PERMITS AT THE END OF
00:14:04OUR DISCUSSION, WE WILL TAKE
QUESTIONS FROM ALL OF YOU IN THE
00:14:06AUDIENCE.
WE WILL BEGIN WITH THE GENERAL
00:14:09QUESTION FOR EVERYBODY.
FIRST OF ALL, I WOULD LIKE TO
00:14:11ASK ARE SURVIVORS, HOW DID YOU
SUSTAIN YOUR TRAUMATIC BRAIN
00:14:16INJURY?
TO OUR MEDICAL PROFESSIONALS,
00:14:19HOW DID YOU BECOME INVOLVED IN
THE TREATMENT OF TRAUMATIC BRAIN
00:14:22INJURY?
CHARLIE, COULD YOU PLEASE TELL
00:14:26US HOW YOU WERE INJURED?
>> I WAS INJURED FLYING A
00:14:31MISSION IN MY HELICOPTER.
WE WERE OVER A VILLAGE.
00:14:38FLY A.M. ABOUT -- LYING ABOUT
FOUR FEET OVER A RIVER.
00:14:47-- FLYING ABOUT FOUR FEET OVER A
RIVER.
00:14:53AS WE CAME TO THE VILLAGE, THEY
OPENED FIRE ON THE BIRD.
00:15:03THE BIRD TO TWO HITS, AND I TOOK
ONE IN THE HEAD.
00:15:10JANUARY 1971.
>> MATTHEW, COULD YOU PLEASE
00:15:15TELL US YOUR EXPERIENCE?
>> I WAS IN THE ARMY SERVING IN
00:15:31IRAQ WHERE A CAR SIDE BOMB GOT
INTO OUR VEHICLE.
00:15:38I WAS THE ONLY ONE OF FIVE
INDIVIDUALS WHO SURVIVED.
00:15:41I HAD MANY INJURIES.
I HAD A DEPRESSED SKULL
00:15:48FRACTURE PLUS MY BRAIN HAD NOT
ANNOUNCED AROUND IN THE
00:15:55EXPOSURE.
I ALSO HAD EIA LARGE STROKE AND
00:16:03SEVERAL SMALL STROKES.
>> PAM, TELL US ABOUT YOUR
00:16:07INJURY.
>> I WAS ON A MOTORCYCLE, I WAS
00:16:12WEARING A HELMET, BUT I WOULD
FIND OUT IF YOU YEARS LATER THAT
00:16:15THE HELMET WAS NOT APPROVED BY
THE DEPARTMENT OF
00:16:18TRANSPORTATION.
IT WAS A NOVELTY HELMET.
00:16:19WE HIT THE CAR IN FRONT OF US AT
35 MILES PER HOUR AND I WAS
00:16:27EJECTED 20 FEET, WHICH RESULTED
IN TWO SKULL FRACTURES, A
00:16:33RUPTURED EARDRUM, AND BROKEN
BONES IN MY BACK.
00:16:37WEST VIRGINIA, 2000.
>> SAM, COULD TALK ABOUT YOUR
00:16:43INJURIES?
>> MY PERSONAL EXPERIENCE WITH
00:16:48TRAUMATIC BRAIN INJURY WAS I
STARTED PLAYING BASKETBALL WITH
00:16:51MY HIGH SCHOOL BASKETBALL TEAM.
I WAS 14 AT THE TIME.
00:16:55I WAS AT THE BASKETBALL CAMP IN
NORTH CAROLINA WENT I WENT FOR A
00:16:58REBOUND.
TWO GIRLS WENT UP IN THE AIR
00:17:03WITH ME AND PUSHED ME BACK.
I LANDED HEADFIRST ON THE BACK
00:17:06OF MY HEAD, AND THE REST OF MY
BODY FELL ONTO THE FLOOR TO I
00:17:10DON'T REMEMBER MUCH FROM THAT
DAY.
00:17:11>> TURNING TO OUR MEDICAL
PROFESSIONALS, DR. BOGNER, COULD
00:17:19YOU TELL US HOW YOU BECAME
INVOLVED IN THE TREATMENT OF
00:17:22TBI?
>> I FIRST BECAME INVOLVED IN
00:17:26GRADUATE SCHOOL, WHEN I WAS
EXPOSED TO A STUDY OF THE BRAIN.
00:17:28THE REHABILITATION CENTER AT
OHIO STATE, I DID POSTDOCTORAL
00:17:35EXPERIENCE, AND AFTER WORKING
THERE FOR A COUPLE OF YEARS IN
00:17:39REHABILITATION, IT REALLY HIT
HOME TO ME HOW MUCH I ENJOYED
00:17:42WORKING WITH PEOPLE WHO
SUSTAINED INJURIES, AND THEIR
00:17:48FAMILY MEMBERS.
THEIR RESILIENCE, OPTIMISM, AND
00:17:51THEIR STRUGGLES.
ALL THAT IMPRESSED ME, AND I
00:17:55WANTED TO KEEP WORKING WITH SUCH
WONDERFUL PEOPLE.
00:17:57>> DR. SIDDIQUI?
>> I HAVE BEEN WITH THE VA FOR
00:18:05OVER 30 YEARS.
IT WAS IN 2007 WHEN THE
00:18:08DEPARTMENT OF DEFENSE AND
VETERANS ADMINISTRATION WAS
00:18:11MANDATED TO SEE EVERYBODY
RETURNING FROM IRAQ AND
00:18:15AFGHANISTAN LIKE YOU SAID
ALREADY, 20% OF THEM A POSITIVE
00:18:20FOR TRAUMATIC BRAIN INJURY.
I WAS INVOLVED IN SCREENING THEM
00:18:30AND TAKING CARE OF THEM, AND
SENDING THEM TO RESOURCES FOR
00:18:35HELP.
>> THANK YOU, DR..
00:18:40STEPHANIE?
>> MY EXPERIENCE WITH TRAUMATIC
00:18:46BRAIN INJURY IS PERSONAL AND
PROFESSIONAL.
00:18:48WHEN I WAS IN COLLEGE, MY
DEAREST FRIEND WAS KILLED AS A
00:18:51RESULT OF THE MOTORCYCLE
ACCIDENT.
00:18:53WITH AN IMAGE IS STILL IN MY
MIND -- YOU DON'T FORGET THAT
00:19:02EVER.
AFTER I FINISHED GRADUATE
00:19:06SCHOOL, I FOUND MYSELF IN
HARTFORD, CONNECTICUT, AND TOOK
00:19:09AN INNOVATIVE JOB, AT THAT TIME,
WITH THE TRAVELERS INSURANCE CO.
00:19:13INDEMNITY INSURANCE COVERED A
LOT OF HOSPITAL SERVICES, BUT
00:19:19NOT A LOT OF VERY ANCILLARY
SERVICES.
00:19:24THEY ASKED ME TO DEVELOP A
CATASTROPHIC CASE MANAGEMENT
00:19:27PROGRAM FOR THOSE INDIVIDUALS
THAT SUSTAINED VARIOUS ILLNESSES
00:19:32OR INJURIES THAT COULD BE
TREATED IN AN ALTERNATE SETTING
00:19:37RATHER THAN A HOSPITAL.
I QUICKLY FOUND OUT THAT MY
00:19:40BIGGEST CASE OF INVOLVED
TRAUMATIC BRAIN INJURY, AND
00:19:46BECAUSE THE CASES WERE SPREAD
OUT ACROSS THE COUNTRY, I BEGAN
00:19:50TO LEARN TWO THINGS.
FIRST OF ALL, HOW DIFFICULT IT
00:19:55WAS TO FIND A LOT OF FUNDING FOR
SOME NECESSARY KINDS OF
00:19:58TREATMENT THAT WERE NOT
NECESSARILY PART OF THE MEDICAL
00:20:02COVERAGE PLAN.
AND SECONDLY, HOW VARIED THE
00:20:10RESOURCES WERE ACROSS THE
COUNTRY AND AT THE STATE.
00:20:12STATES OF OFFERED A LOT OF
ASSISTANCE TO OTHER STATES
00:20:19OFFERED VERY LITTLE.
I WENT TO THE EXECUTIVE DIRECTOR
00:20:25OF THE BRAIN INJURY ASSOCIATION,
AND ASKED, HOW CAN I HELP WITH
00:20:30WHAT WE ARE TRYING TO DO IT IN
OHIO?
00:20:32SINCE THAT TIME, WE ARE TRYING
OUR BEST TO DEVELOP THE FULL
00:20:36GAMUT OF RESOURCES TO HELP
INDIVIDUALS AND FAMILIES WHO
00:20:39CONFRONT THE CHALLENGES OF
TRAUMATIC BRAIN INJURY.
00:20:43>> OUR SECOND QUESTION IS
DIRECTED TO OUR TBI SURVIVORS.
00:20:50CHARLIE, WERE YOU DIAGNOSED
SOON AFTER YOUR ENTRY, OR DID IT
00:20:56COME LATER?
WHAT SIGNS DID YOU EXPERIENCE?
00:20:58>> I WAS DIAGNOSED RIGHT
AFTER -- IT ENTERED THE BOTTOM
00:21:10OF MY HEAD AND CAME OUT THE TOP.
I WAS INSTANTLY PARALYZED ON MY
00:21:14RIGHT SIDE.
WHEN I CAME TO, I THOUGHT I HAD
00:21:20BEEN SHOT ON MY RIGHT ARM.
>> WOW.
00:21:25>> I GUESS THE FIRST DIAGNOSIS
WAS WHEN I CAME OUT OF SURGERY.
00:21:38THE MAN WAS SITTING THERE ON A
GURNEY, AND HE SAID, "CHARLIE,
00:21:46YOU HAVE BEEN SHOT IN THE HEAD
TRADE YOU ARE PARALYZED ON YOUR
00:21:50RIGHT SIDE.
YOU CANNOT TALK."
00:21:52I THOUGHT, HOW DOES HE KNOW?
I HAVEN'T SAID ANYTHING YET.
00:22:02I TRIED.
AND I COULDN'T TALK.
00:22:06IT CAME OUT GIBBERISH.
BUT ONE WORD I GOT OUT.
00:22:15I CANNOT SAY IT, BECAUSE YOU ARE
TAPING THIS.
00:22:20[LAUGHTER]
BUT I REALLY WORKED ON IT.
00:22:24I DON'T KNOW HOW LONG IT TOOK.
BUT IT STARTED WITH -- I WAS
00:22:32ACTIVATED, I COULD NOT SPEAK.
I FINALLY SAID THE LAST SOUND
00:22:41SOMETIME LATER, AND A YOUNG MAN
ALMOST FELL OFF HIS AND BURNIE
00:22:45BECAUSE HE WAS LAUGHING SO HARD.
[LAUGHTER]
00:22:47THAT IS HOW I LEARNED MY
DIAGNOSIS.
00:22:52>> THANK YOU.
MATTHEW?
00:22:57>> FIRST, THE DOCTORS WERE NOT
SURE HOW MUCH OF MY BRAIN WAS
00:23:15AFFECTED BY IT, BECAUSE THEY HAD
TO KEEP ME SEDATED AND STABLE
00:23:25ENOUGH TO HAVE MY BROKEN JAW AND
ARM FIXED.
00:23:28IT WAS 2.5 WEEKS BEFORE I WAS
ALLOWED TO MAKE UP.
00:23:33MY MOM CAN TELL YOU WHAT I WAS
LIKE AT THAT POINT.
00:23:38>> THAT YOU HAD A MULTIPLE OTHER
INJURIES.
00:23:49HE HAD MANY FACTO --
FRACTURES, HE HAD BURNS, AND AS
00:24:01A RESULT OF THE EXPLOSION, HE
HAD A LOT OF INJURIES.
00:24:04INITIALLY, AS HE SAID, HE WAS
KEPT SEDATED.
00:24:10WHEN THE SEDATION WAS FINALLY
LIFTED, WE WERE ABLE TO
00:24:12DETERMINE THAT HE COULD HEAR,
BECAUSE HE WOULD RESPOND TO
00:24:19SOUND, AND HE WAS UNABLE TO MOVE
ANY PART OF HIS BODY EXCEPT FOR
00:24:26HE COULD MOVE HIS LEFT HAND, HIS
RIGHT THUMB, FOHIS FOREFINGER, D
00:24:35HE COULD BLINK HIS EYES.
EVERYTHING ELSE WAS FROZEN.
00:24:39FROM THAT POINT ON, BASICALLY,
HE WOKE UP ONE BODY PART AT A
00:24:42TIME.
AND HE WOULD --
00:24:50[INAUDIBLE]
HE BASICALLY GREW UP ALL OVER
00:24:55AGAIN.
INITIALLY, IT WAS REALLY
00:25:00DIFFICULT FOR THE DOCTORS TO
GIVE A PROGNOSIS.
00:25:02WE DID NOT GET A LOT OF FEEDBACK
FOR MATTHEW.
00:25:07HE ENDED UP IN GERMAN HOSPITAL,
BUT THE GERMAN DOCTORS SAID TO
00:25:12ME, SOMETIMES THE SCAN LOOKS
TERRIBLE ON THE PERSON WAKES UP,
00:25:18AND SOMETIMES THERE IS JUST ONE
LITTLE THING ON THE SCAN AND
00:25:23THEY DON'T.
YOU TAKE WHAT YOU GET, YOU ARE
00:25:25HAPPY FOR IT, AND YOU HOPE FOR
MORE.
00:25:27SO, IT STARTED FROM NOTHING, AND
HE WORKED HIS WAY BACK.
00:25:33HIS PROGNOSIS AFTER 3.5 MONTHS
AFTER WE LEFT OFF THE RAID WAS
00:25:40VERY POOR, UNLIKELY THAT HE
WOULD BE ABLE TO WALK -- AFTER
00:25:43WE LEFT WALTER REED WAS VERY
POOR, UNLIKELY THAT HE WOULD BE
00:25:47ABLE TO WALK OR COMMUNICATE OR
ANYTHING LIKE THAT.
00:25:49>> PAM, COULD YOU ADDRESS --
>> HE GREW UP VERY WELL.
00:25:56AWESOME YOUNG MAN.
MY INJURY WAS NOT DIAGNOSED
00:26:03RIGHT AWAY.
I WAS LET GO AFTER EVERY 1 DAYS
00:26:09AND TOLD THAT I HAD A SPOT OF
BLOOD ON MY BRAIN, AND THERE
00:26:14WOULD BE NOTHING TO WORRY ABOUT.
THE SKULL FRACTURE AND BROKEN
00:26:18BONES ON MY BACK AND VISIT YOUR
TRAUMATIC BRAIN INJURY I WAS
00:26:21SENT -- AND A SEVERE TRAUMATIC
BRAIN INJURY I WAS SENT HOME
00:26:26WITH.
I AM TOLD ALL THIS.
00:26:28I DON'T REMEMBER.
SOMETIME AFTER THAT WEEK, I HAD
00:26:31THE WORST HEADACHE OF MY LIFE.
I HAVE BEEN A MIGRAINE SUFFERERS
00:26:35AND I WAS 13 YEARS OLD.
THEY HAVE CHANGED AND BROUGHT TO
00:26:38THE OTHER KIND OF HEADACHE WITH
TRAUMATIC BRAIN INJURY.
00:26:41I WOKE UP WITH THIS HEADACHE
THAT WAS THE WORST EVER.
00:26:45I WENT TO THE HOSPITAL, AND THEY
SAID, "IF YOU HAD 24 HOURS, YOU
00:26:50WOULD HAVE BEEN GONE, BECAUSE
YOUR BRAIN WAS FILLING UP WITH
00:26:54BLOOD AND."
I WAS NOT ABLE TO BREED.
00:26:57I WAS SENT HOME WITH A BREATHING
MACHINE -- I WAS NOT ABLE TO
00:27:01BRIEF.
I WAS SENT HOME WITH A BREATHING
00:27:04MACHINE.
WHEN I WAS NOT DOING WELL ON THE
00:27:08TREADMILL AND A STAIRMASTER,
THEY DECIDED TO DO MORE TESTING
00:27:16AND FOUND THAT MY BACK WAS
BROKEN IN 11 PLACES.
00:27:18WITH THE WORK I DO, I SEE A LOT
OF TRAUMATIC BRAIN INJURIES THAT
00:27:24ARE NOT DIAGNOSED RIGHT WAY.
I REALLY BELIEVE THAT MYSELF,
00:27:30I'M DOING GREAT.
BUT OBVIOUSLY COME EARLY
00:27:34DIAGNOSIS IS IMPORTANT.
NOT JUST THE PHYSICAL PART, BUT
00:27:38WHAT I DEAL WITH A LOT WITH WHAT
I DO AND MYSELF, TO, THE
00:27:41EMOTIONAL PART.
THE EARLY DIAGNOSIS HELPS WITH
00:27:46THE EMOTIONAL PART.
>> THANK YOU, PAM.
00:27:51SAM?
>> I STARTED WAKING UP ON THE
00:27:56GROUND AFTER, I GUESS, TWO OR
THREE MINUTES LATER.
00:28:02I WAS JUST OUT OF IT, NO BETTER
WAY TO DESCRIBE IT.
00:28:07I CANNOT FEEL ANYTHING FOR MY
WAIST DOWN.
00:28:10-- COULD NOT FEEL ANYTHING FROM
MY WAIST DOWN.
00:28:15I WHAD A HEADACHE, I WAS JUST
MISERABLE.
00:28:20I COULD HEAR THE COACHES AND
TRAINERS ARE DGUING -- WHAT DO
00:28:27WE DO WITH HER?
THEY FINALLY DECIDED THAT EACH
00:28:33PERSON WOULD CARRY -- ONE PERSON
WOULD CARRY ONE ARM, ANOTHER
00:28:41PERSON, ANOTHER LEG.
THEY GOT ME OFF OF THE COURSE
00:28:44AFTER ABOUT 15 -- THEY GOT ME
OFF THE COURT AFTER ABOUT 15
00:28:50MINUTES AND TOOK ME TO THE
HOSPITAL.
00:28:51ALL THEY IT WAS THE CAT SCAN.
THEY NEVER DID X-RAYS AREOFF
00:29:01ANYTHING.
THEY SENT ME BACK TO THE DORMS
00:29:06AND SAID THAT IF YOU START
THROWING OUT OR GETTING
00:29:08HEADACHES, COME BACK.
I WENT HOME WITH MY COACH.
00:29:11I WENT BACK TO THE DORM, AND
THEY LET ME NOW FOR AN HOUR --
00:29:18LET ME NAP FOR AN HOUR.
THE COACHES DECIDED TO FLIP ME
00:29:25OFF OF THE MATTRESS.
I DON'T KNOW WHY, BUT THE NEXT
00:29:28DAY, WE CAME HOME, AND MIY MOM
AND DAD RAN ONTO THE BUS AND
00:29:36THEY WERE IN TOTAL SHOCK.
IT WAS JUST THE FIRST COUPLE OF
00:29:40MONTHS, I WAS JUST OUT OF IT.
SEVERE WHIPLASH.
00:29:46THAT WAS IT.
AFTER EITESTING, THEY DIAGNOSED
00:29:53ME WITH TRAUMATIC BRAIN INJURY.
SOME OF THE SENTENCE I HAD WERE
00:29:58NONSTOP HEADACHES.
I WAS SENSITIVE TO LIGHT AND
00:30:04NOISE AND SMELLS.
I HAVE COGNITIVE PROBLEMS,
00:30:07IRRITABILITY, DEPRESSION,
ANXIETY, POSTTRAUMATIC STRESS
00:30:10DISORDER.
I COULD NOT CONCENTRATE.
00:30:15I JUST WAS MISERABLE FOR THE
LONGEST TIME.
00:30:20>> AFTER HEARING STORIES OF OUR
SURVIVORS AND LEARNING THAT IN
00:30:28THE MILITARY, THERE IS A
RECOGNITION EARLY ON THAT THERE
00:30:31IS A TRAUMATIC BRAIN INJURY, BUT
WITH ACCIDENTS, IT MAY NOT
00:30:36PRESENT ITSELF SO SOON.
THIS BRINGS ME TO THE FOLLOW-UP
00:30:39QUESTION -- WHAT PROBLEMS DOES
TBI POSE FOR PROFESSIONALS, AND
00:30:50HOW SOON CAN THE INJURY BE
DIAGNOSED?
00:30:52>> AS WE HAVE HEARD FROM OTHER
SURVIVORS -- THEY HAVE SEEN THAT
00:31:01THERE IS ACUTE HEAD TRAUMA THAT
COULD BE DIAGNOSED RIGHT AWAY.
00:31:09THERE IS ALTERATION IN THE
MENTAL STATUS, THERE MAY BE
00:31:15PARALYSIS IN SURVIVORS.
AN INABILITY TO TALK WITH THE
00:31:29RIGHT-SIDE PARALYSIS.
ACUTE TREE IS EASY TO DIAGNOSE.
00:31:40-- ACUTE INJURY IS EASY TO
DIAGNOSE.
00:31:47THEY HAVE INDIVIDUAL PROBLEMS,
AND IN TERMS OF DIAGNOSING, I
00:31:55DON'T THINK THERE IS ANY
PROBLEM -- DIAGNOSIS IS MADE
00:32:02RIGHT AWAY.
BUT WITH THE SURVIVORS WHO HAD
00:32:07SUBDURAL HEMATOMA, THE DIAGNOSIS
MAY BE DELAYED FOR HOURS OR EVEN
00:32:11DAYS.
THE CHALLENGE -- AS A VA
00:32:18PHYSICIAN, WHAT I SEE EVERY DAY
IS THAT DIAGNOSING MILD
00:32:24TRAUMATIC BRAIN INJURY -- THE
IRAQI AND OTHER AFGHANISTAN
00:32:30VETERANS, WHEN THEY COME BACK TO
AS AND GIVE THE HISTORY OF BEING
00:32:34IN COMBAT AND HAVING SOME KIND
OF EXPOSURE TO IED'S OR RPG'S,
00:32:45THEIR MEMORIES SO FOGGY.
-- MEMORY IS SO FOGGY.
00:32:58TO THIS DAY, THERE IS NO
DYDIAGNOSTIC TESTING.
00:33:06AS A NEUROLOGIST, WHAT WE DO IS
WE DEPEND ON VETERANS' HISTORY.
00:33:14THE MAIN COMPLAINTS ARE, FIRST
OF ALL, WE HAVE TO ASK THEM, DID
00:33:20YOU LOSE CONSCIOUSNESS?
THEY MAY SAY YES OR NO, OR THEY
00:33:25MAY BE DAYS OR CONFUSED.
THERE MAY BE AND THE SHIA --
00:33:29THERE MAY BE AMNESIA.
VERY COMMON COMPLAINTS ARE
00:33:40MEMORY IMPAIRMENT, HEADACHES,
DIZZINESS.
00:33:44THERE MAY BE SENSITIVITY TO
LIGHT AND SOUND.
00:33:47THEY ALSO COMPARED -- COMPLAIN
OF VERTIGO, EVERY DISTURBANCES,
00:33:58LIKE WE TALKED ABOUT, AND
DEPRESSION, ANXIETY, SLEEP
00:34:03DISORDERS.
THEY ARE SOCIALLY ISOLATED.
00:34:06THEY DON'T HAVE ANY FAMILY
SUPPORT AND SO FORTH.
00:34:09THESE SYMPTOMS MARCH INTO WHAT
WE CALL POSTTRAUMATIC STRESS
00:34:18DISORDER, AND SOMETIMES IT IS
VERY HARD TO SEPARATE THESE
00:34:21SYMPTOMS FROM A MILD TRAUMATIC
BRAIN INJURY.
00:34:23WE DEPEND ON PSYCHOLOGICAL
TESTING.
00:34:34THESE ARE THE SYMPTOMS AND
CHALLENGES.
00:34:40>> DR. BOGNER?
>> DITTO.
00:34:50IT BECOMES MUCH MORE DIFFICULT
AS IT PASSES TO DIAGNOSE
00:34:55TRAUMATIC BRAIN INJURY,
PARTICULARLY WHEN YOU THINK
00:34:57ABOUT THE FACT THAT MANY PEOPLE
MAY HAVE SUSTAINED TRAUMATIC
00:35:00BRAIN INJURIES EARLY IN THE
LIVES.
00:35:01THEY MAY KNOW VERY LITTLE ABOUT
WHAT HAPPENED TO THEM BEFORE THE
00:35:07AGE OF FIVE, AND YET THERE ARE
SOME FOLKS OUT THERE WHO
00:35:11SUSTAINED SIGNIFICANT BRAIN
INJURIES BEFORE THE AGE OF FIVE.
00:35:13YOU WOULD BE SURPRISED AT THE
NUMBER OF INJURIES THAT SOME
00:35:17PEOPLE HAVE INCURRED OVER A
LIFETIME.
00:35:19AND THEY MAY NOT REALIZE THAT
THOSE ARE TRAUMATIC BRAIN
00:35:24INJURIES.
SOME PEOPLE MAY OF TOLD YOU THAT
00:35:29YOU HAVE HEHAD YOUR BELL RUNG.
THERE ARE FOLKS OUT THERE WITH
00:35:37TWO, THREE, FOUR, FIVE BRAIN
INJURIES THEY SYSTEM OVER A
00:35:41LIFETIME THAT HAVE CHANGED THEIR
LIVES NOW.
00:35:43SOME OF THOSE FOLKS HAVE NOT
RECEIVED THAT HELPED THAT THEY
00:35:48--
>> ONE THING THAT COMES
00:35:55ACROSS, AFTER EVERYTHING WE
HAVE HEARD, IS THAT A BRAIN
00:35:58INJURY IS NOT A SINGLE INJURY.
IT IS 100,000 INJURIES.
00:36:02WE ARE UNIQUE INDIVIDUALS AND WE
ARE WIRED DIFFERENTLY TO BEGIN
00:36:07WITH.
WHEN A TRAUMATIC BRAIN INJURY
00:36:09OCCURS, WE DON'T OFTEN HAVE A
VERY GOOD BASELINE INFORMATION
00:36:13ABOUT WHAT THE PERSON'S
SITUATION WAS BEFORE.
00:36:17JUDGING AN IMPACT OF A TRAUMA IS
DIFFICULT FOR THE MEDICAL TEAM.
00:36:24ONE THING THAT WE SEE ALL THE
TIME IS THAT INDIVIDUALS DON'T
00:36:31HAVE THE BENEFIT OF A GREAT DEAL
OF CLINICAL RESEARCH.
00:36:35RESEARCH IS JUST NOW BEGINNING
TO TAKE HOLD, SAID THAT THE
00:36:39MEDICAL COMMUNITY CAN HAVE SOME
REFERENCE MATERIAL AVAILABLE.
00:36:41>> THE NEXT COUPLE OF QUESTIONS
RELATE TO TBI SURVIVORS.
00:36:53HOW HAS LIVING WITH TBI AFFECTED
YOUR DAILY LIFE, AND HOW YOU
00:36:59COPE WITH THIS OR COMPENSATE FOR
IT?
00:37:01CHARLIE?
>> I GUESS THE FIRST THING THAT
00:37:06I'VE LEARNED -- IT TAKES ME
TWICE AS LONG TO DO EVERYTHING.
00:37:11AND IT TAKES TWICE MUCH EFFORT
HA REGULAR PERSON -- TWICE AS
00:37:23MUCH EFFORT AS A REGULAR PERSON
TO DO THE THINGS THAT REGULAR
00:37:25PRISONS TO.
-- THAT REGULAR PERSONS DO.
00:37:31I AM OK WITH IT.
IT WAS FRUSTRATING AT FIRST.
00:37:35BUT WHEN YOU HAVE THE SPEECH
PROBLEMS AND MEMORY PROBLEMS --
00:37:48I HAD A SPEECH ALONG TIME AGO
THAT I GAVE, AND IT WAS CALLED 4
00:37:55F'S.
FAITH, FAMILY, FRIENDS, AND
00:38:02FORTITUDE.
IF YOU HAVE FAITH IN YOURSELF,
00:38:08GOD, IF YOU HAVE A FAMILY THAT
UNDERSTANDS AND LETS YOU FAIL
00:38:20EVEN THOUGH THEY COULD HELP YOU,
IF YOU HAVE FRIENDS YOU SURROUND
00:38:24YOURSELF WITH, GOOD FRIENDS THAT
OUR UNDERSTANDING -- I WORKED
00:38:29OUT WITH THE SAME MAN FOR 32
YEARS IN THIS EMP -- IN THE
00:38:38SAME PLACE -- WELL, NOW WE HAVE
ANY PLACE.
00:38:43ONE DAY HE SAID -- WE NEVER
TALKED ABOUT DISABILITIES, AND
00:38:49HE SAID, "CHARLIE, WHEN I WORKED
OUT WITH YOU, I DON'T SEE YOU AS
00:38:57DISABLED."
"THANKS, WHEN I WORK WITH YOU, I
00:39:04DON'T FEEL DISABLED."
THAT IS THE KINDS OF THINGS THAT
00:39:08YOU GOT TO KNOW, THAT YOU HAVE
TO FIND SOME SANITY.
00:39:18YOU HAVE TO FIND SOME HUMOR IN.
-- IN IT.
00:39:24>> THANK YOU, CHARLIE.
MATTHEW, COULD YOU TELL US HOW
00:39:30IT HAS AFFECTED YOUR LIFE AND
HOW YOU COPE?
00:39:32>> I LIVE IN A SUPPORTED LIVING
APARTMENT.
00:39:36IT IS A REGULAR PART MIN.
IT IS JUST THAT I HAVE PEOPLE
00:39:43WHO HELP ME GET WHERE I NEED TO
GO AND HELP ME STAY ORGANIZED.
00:39:45I ALSO USE STRATEGY IS TO HELP
WITH MY SHORT TERM MEMORY
00:39:55DEFICITS, MOTOR SKILLS.
I HAVE LEARNED HOW TO DO THINGS
00:40:07BY STABILIZING ONE OR BOTH OF MY
ARMS.
00:40:10SORRY.
I HAVE -- MY ARMS ARE VERY
00:40:25SHAKY, AND THAT MAKES IT
HARD FOR ME WITH MOTOR SKILLS.
00:40:32IT TAKES ME LONGER TO LEARN NEW
THINGS.
00:40:39WE BREAK EVERYTHING DOWN INTO
THE STEPS AND ROUTINES UNTIL I
00:40:44HAVE IT MEMORIZED.
>> THANK YOU.
00:40:48IS THE INJURY TO YOUR ARMS FROM
TBI OR THE OTHER WORDS SEVERED
00:40:56IN THE EXPLOSION -- OTHER WOUNDS
SUFFERED IN THE EXPLOSION?
00:41:04>> STROKE.
>> WOW.
00:41:07PAM?
>> I AM NOT COMFORTABLE TALKING
00:41:12ABOUT MYSELF, BECAUSE WHEN I'M
IN FRONT OF A GROUP, I USUALLY
00:41:15TALK ABOUT THE VETERANS.
I WOULD JUST TELL YOU THAT HOW
00:41:19IT AFFECTS MY LIFE -- IT WAS
WORSE.
00:41:22I BELIEVE I.T. IS GOING TO GET
BETTER THAN WHAT IT IS TODAY.
00:41:29I TOTALLY BELIEVE IT WILL GET
BETTER THAN WHAT IT IS TODAY.
00:41:34FOR ME, THE HOPE AND INSPIRATION
I GET -- I OFTEN REFER TO MYSELF
00:41:41AS A WOMAN FROM OHIO WITH A
BRAIN INJURY WHO CARES DEEPLY
00:41:43ABOUT HER COUNTRY.
THAT IS IT.
00:41:45NO ONE SPECIAL.
IT IS THE VETERANS.
00:41:51I'VE BEEN BLESSED TO SERVE MANY
OVER THE COUNTRY.
00:41:54THE WOMAN SITTING HERE TODAY IS
NOT A MOMENT -- IS NOT THE SAME
00:42:07WOMAN IN 2009 PAID 2009, WHEN I
STARTED THE ORGANIZATION, I WAS
00:42:11IN BED DAYS IN A ROW.
I WAS HAVING EVEN A HARDER TIME
00:42:20COPING WITH THE NEW PAM AND WHO
I HAD BECOME.
00:42:27YOU KNOW MY PERSONALITY.
I WAS VERY DEPRESSED -- SHY,
00:42:36BELIEVE IT OR NOT, QUIET.
IT' SCARED THE LIVING DICKENS OT
00:42:47OF ME.
I ONLY KNEW I WASN'T THEN.
00:42:52EVERYTHING I WENT THROUGH, I
THOUGHT MAYBE I COULD HELP A
00:42:55VETERAN OR TWO.
THEY NEED TO KNOW THAT THEY CAN
00:43:02BECOME MORE THAN THEIR BRAIN
INJURY, THAT THEY CAN MOVE AWAY
00:43:07FROM THEMSELVES.
I TOOK A PASS FROM EXTREME
00:43:12ADVERSITY TO JOIN FOR RENEWAL --
PATH FROM EXTREME ADVERSITY TO
00:43:19JOYFUL RENEWAL.
I STILL HAVE CHALLENGES.
00:43:25AND I RECOVERED?
-- AM I RECOVERED?
00:43:29I GUESS NOT, BECAUSE I STILL
HAVE CHALLENGES BUT DO I HAVE
00:43:36EIE A JOYFUL RENEWAL?
YOU BET I DO.
00:43:45YOU HAVE TO FIND SOMETHING TO
GIVE THE PASSION, SOMETHING AWAY
00:43:48FROM YOUR BRAIN INJURY TO FOCUS
ON.
00:43:50AND THEN YOUR WORLD JUST
BLOSSOMS.
00:43:52I AM VERY BLESSED AND HONORED TO
DO WHAT I DO AND HAVE THE PEOPLE
00:43:56I HAVE IN MY LIFE.
>> THANK YOU, PAM.
00:44:02SAM?
>> RIGHT AFTER MY INJURY, I WAS
00:44:07VERY DEPRESSED, VERY SAD, VERY
ANXIOUS.
00:44:10A FEW MONTHS AFTER THE BRAIN
INJURY, I ASK IF I COULD SEE IT
00:44:20PSYCHOLOGISTS TO DEAL WITH
CERTAIN ISSUES.
00:44:22A FEW YEARS LATER, WE SAW THE
BRAIN INJURY ASSOCIATION OF
00:44:29OHIO, WHICH HAS BEEN NOTHING BUT
A BLESSING FOR MY FAMILY.
00:44:32THEY HAVE HELPED US SO MUCH,
THEY HAVE HELPED MY MOM AND I
00:44:38HEAL.
THEY HAVE HELP WITH EVERYTHING.
00:44:42THEY HELPS ME REALIZE I COULD DO
MORE WITH MY LIFE.
00:44:45I HAVE BECOME AN ADVOCATE FOR
BRAIN INJURIES AND CONCUSSIONS,
00:44:49ESPECIALLY.
I LOVE GOING OUT THERE AND
00:44:54RAISING AWARENESS AND HELPING
OTHER PEOPLE WHO HAVE GONE
00:44:56THROUGH WHAT I'VE GONE THROUGH.
THE HARDEST THING FOR ME TO COPE
00:45:00WITH AFTER THE INJURY WAS NOT
BEING ABLE TO PLAY SPORTS
00:45:03ANYMORE.
ALL I WANTED TO DO IT AFTER THE
00:45:07INJURY WAS PLACE PORTS, AND I
COULDN'T.
00:45:09THAT WAS HARD.
ALL MY FRIENDS DID NOT WANT TO
00:45:13BE MY FRIENDS ANYMORE BECAUSE
THEY COULD NOT UNDERSTAND WHAT I
00:45:16WAS GOING THROUGH.
THAT WAS PRETTY TOUGH, TOO.
00:45:19I WAS LUCKY TO HAVE TWO BEST
FRIENDS, KATIE AND EMILY, AND
00:45:29THEY STOOD BY MY SIDE THE WHOLE
TIME, ALONG WITH MY MOM AND
00:45:33FAMILY.
I HAVE HAD A REALLY HARD TIME
00:45:35BEING SICK ALL THE TIME, BEING
HOSPITALIZED.
00:45:39THAT HAS BEEN REALLY HARD.
I TRIED TO THINK THAT THERE IS
00:45:42ALWAYS SOMEONE WHO IS WORSE OFF
OUT THERE THAN I AM.
00:45:46I TRY TO STAY POSITIVE, AND THAT
HELPS A LOT.
00:45:51>> I THINK WE HAVE HEARD ALREADY
HOW MUCH OF A FAMILY EVENT
00:45:56TRAUMATIC BRAIN INJURY IS FOR
THOSE WHO SUFFER AND THEIR LOVED
00:46:01ONES.
I WOULD LIKE OUR SURVIVORS TO
00:46:04SPECIFICALLY TALK ABOUT THE
EFFECT OF TBI ON THEIR FAMILY.
00:46:08CHARLIE, COULD YOU ADDRESS THAT
IMPACT, PLEASE?
00:46:10>> MY WIFE -- WE WERE MARRIED
THREE YEARS BEFORE I WENT INTO
00:46:20THE SERVICE.
WE HAD BEEN MARRIED -- WE HAVE
00:46:27BEEN MARRIED 46 YEARS SO FAR.
[APPLAUSE]
00:46:30SHE HAS BEEN THERE BESIDE ME,
SOMETIMES BEHIND ME, ALWAYS -- I
00:46:47HAVE TO TRY THINGS.
YOU KNOW, IT IS NOT TO SAY THAT
00:46:55DOCTORS ARE WRONG SOMETIMES, BUT
THEY WILL TELL YOU, "YOU
00:47:06SHOULDN'T DO THIS."
I HAVE TO END THE STRIKE EIGHT.
00:47:08-- I HAVE TO AT LEAST TRY.
SHE HAS ALWAYS BEEN THERE FOR A
00:47:16HELPING HAND.
I HAVE A GREAT SIGN.
00:47:18SHE WAS BORN IT TWO YEARS AFTER
I CAME HOME.
00:47:21-- HE WAS BORN TWO YEARS AFTER I
CAME HOME, SO SHE NEVER KNEW
00:47:28THAT I HAD TWO ARMS AND TWO
LEGS.
00:47:32WE DO EVERYTHING TOGETHER.
IT WAS A MOTIVATION FOR ME.
00:47:36WHAT HURTS OUR FAMILY THE WORST
WAS THE POSTTRAUMATIC STRESS
00:47:49DISORDER THAT I SUFFER STILL.
BUT STILL, THEY DON'T UNDERSTAND
00:48:00THE NIGHTMARES AND ANCGER.
MINE STOOK -- MINE STUCK BY ME
00:48:15AND THREW THE TREATMENT.
-- THROUGH THE TREATMENT.
00:48:20IF YOU ARE LUCKY ENOUGH TO HAVE
AN UNDERSTANDING FAMILY, THEN WE
00:48:25MAKE IT THROUGH.
>> THANK YOU.
00:48:31MATTHEW, COULD YOU TALK ABOUT
HOW IT HAS AFFECTED YOUR FAMILY?
00:48:37>> IT CHANGED EVERYTHING.
I'M MUCH -- I'M NOT THE SAME
00:48:48THAT I WAS, BUT I AM STILL THE
SAME PERSON INSIDE.
00:48:52BUT EVERYBODY HAD TO ADJUST TO
THE NEW ME, EVEN ME.
00:48:55I AM STILL THE OLDEST, BUT I AM
NOT THE SAME AS I WAS TO MY
00:49:13YOUNGER SISTER AND BROTHER.
OUR BROTHER HAD THINGS PRETTY
00:49:21WELL.
HE WAS 12 WHEN I WAS WOUNDED.
00:49:25MY SISTER HAS HAD A HARDER TIME.
SHE WAS 15 AT THE TIME, AND SHE
00:49:37TOOK IT REALLY HARD.
IT WAS HARD ON EVERYONE.
00:49:40MY MOM'S STILL SPENDS A LOT OF
TIME GOING TO MY APARTMENT WITH
00:49:47ME, DOING PAPERWORK FOR THE VA,
HAVING MEETINGS WITH MY CARE
00:49:56TEAM.
>> THANK YOU.
00:49:59PAM?
>> ONE OF THE STORIES I LIKED IT
00:50:04TUNNEL IS OF MIGHT -- LIKE TO
TELL IS MY SON, WAS EXTREMELY
00:50:12BRIGHT.
HE LOVES TO TELL ME THESE LONG,
00:50:17CONVOLUTED STORIES ABOUT SPORTS.
THAT WAS HARD ENOUGH FOR ME.
00:50:20AFTER MY BRAIN INJURY, HE TRIED
TO TELL ME THESE STORIES, AND I
00:50:24DID NOT HAVE A CLUE.
LOTS OF PEOPLE I WOULD NOT HAVE
00:50:29A CLUE WHAT THEY WERE SAYING,
BUT I WOULD GIVE THEM THEIR
00:50:32OBLIGATORY "WOW."
BUT WITH MY SON, I REALLY WANTED
00:50:41TO UNDERSTAND WHAT HE WAS
TELLING ME.
00:50:44WE DEVISED A SYSTEM, AND WHEN HE
WAS AN 8-YEAR-OLD BOY.
00:50:48HE WOULD TELL ME ONE SENTENCE AT
TIME.
00:50:51IT WOULD TAKE A MINUTE OR SO TO
PROCESS WHAT HE WAS SAYING.
00:50:55AND THEN I WOULD SAY "GO," AND
HE WOULD GIVE ME ANOTHER
00:51:04SENTENCE.
I WISH HE STILL LISTEN TO THAT
00:51:07WELL.
-- LISTENED THAT WELL.
00:51:11[LAUGHTER]
MY HUSBAND -- NOT ONLY DID HE
00:51:18LEAVE, HE TOOK EVERYTHING.
I WAS ALMOST HAMAS, AND I DID
00:51:22NOT KNOW WHERE TO LIVE.
-- I WAS ALMOST HOMELESS, AND
00:51:28I DID NOT KNOW WHERE TO LIVE.
IF ANYBODY THINKS IT'S CIVILIAN
00:51:32CANNOT HELP A VETERAN, YOU ARE
DEAD WRONG.
00:51:34IF WE DID NOT TELL YOU -- IF
THIS YOUNG MAN WAS NOT WEARING A
00:51:41PURPLE HEART, HE WOULD RELAT
-- YOU WOULD NOT REALLY KNOW WHO
00:51:46WAS A VETERAN.
THE INVISIBLE PART OF IT IS
00:51:51AMAZING.
I CALL ON MY TBI BROTHERS AND
00:51:56SISTERS, BECAUSE THERE IS A DEEP
BOND THERE.
00:51:57THE HEART CONNECTING TO THE
HEART IS HOW WE ARE HELPING
00:52:05VETERANS.
THE FAMILIES OF THOSE WE SERVE
00:52:09-- THERE ARE SERVICES OUT
THERE, AND IT IS VERY DIFFICULT
00:52:14FOR FAMILIES IN CRISIS.
LISA WILL BE THE FIRST TO TELL
00:52:20YOU THAT BECAUSE OF MATT'S
SEVERITY, THERE IS DIFFERENT
00:52:26THINGS AS HE GOT A LOT MORE
SERVICES.
00:52:28ALL OF OUR VETERANS DO NOT GET
THAT KIND OF SERVICE.
00:52:31AND DESERT STORM VETERAN GOT TO
THE VA FOR INJURIES, AND THEY
00:52:43TREATED DRUG AND ALCOHOL,
BECAUSE THAT WAS WHAT WAS SEEN.
00:52:50BUT HE GOT TWO TRAUMATIC BRAIN
INJURIES.
00:52:53A LOT OF TIMES THE DOCTORS DON'T
KNOW WHAT TO LOOK FOR, AND ONCE
00:52:59THEY THINK THEY KNOW WHAT TO
LOOK FOR, IT THEY ARE CONFUSED,
00:53:03BECAUSE THERE'S SO MUCH OUT
THERE.
00:53:04A DOOR SLAMS BECAUSE TO MAKE
THIS MUCH MONEY, THIS SITUATION.
00:53:11WE TRY TO HELP FIGURE THAT OUT
WITH THEM.
00:53:12AND HELP THEM THROUGH THAT PATH.
THE FAMILIES ARE A BIG, BIG
00:53:19CONNECTION.
YOU WILL SEE THAT I HAVE MY
00:53:21CHILDREN TO SUPPORT, BUT I DID
NOT HAVE SOMEONE THERE TO
00:53:26SUPPORT ME DAILY.
I WOULD HAVE DONE A LOT BETTER.
00:53:30THE ONES YOU SEE THAT HAVE GOOD
FAMILY SUPPORT OR GOOD SUPPORT
00:53:33IN THE COMMUNITY ARE GOING TO
GET BETTER.
00:53:36THE SUPPORT IN THE COMMUNITY IS
THE SECRET, IN MY OPINION.
00:53:40>> SAM?
>> I THINK TBI CHANGE MY FAMILY
00:53:52FOREVER.
ALL MY YEARS OF PLAYING SPORTS
00:53:55-- I SEVERED SEVEN OR MORE
CONCUSSIONS OVER THAT SPAN OF
00:54:03TIME -- PROBABLY MORE THAN
SEVEN, BUT A LEAST SEVEN.
00:54:07MY PARENTS WOULD NEVER -- MY
PARENTS FELT GUILTY FOR NEVER
00:54:22COME IN AND SAYING, BUT WHAT YOU
NEED TO SIT OUT THIS PRACTICE."
00:54:27WHAT I W -- BUT I HAVE ALWAYS
TOLD THEM, "DON'T FEEL GUILTY
00:54:34FOR THAT."
IT HAS CHANGED MY MOM THE MOST
00:54:41BECAUSE SHE WENT FROM BEING
MIGHT BASKETBALL AND SOCCER MOM
00:54:48TO BE MY CAREGIVER.
LABOR DAY 2004, MIGHT THAT
00:54:54SEVERED AN ALMOST FATAL -- MY
DAD SUFFERED AN ALMOST FATAL MI.
00:55:01WE DID NOT KNOW IF HE WAS GOING
TO MAKE IT.
00:55:05WE ALL STOOD TOGETHER, AND MY
SISTER HAD A HARD TIME WITH MY
00:55:12INJURIES.
SHE HAS BECOME ONE OF THE TOP
00:55:21PEOPLE I TALK TO NOW.
THE MEDICAL BILLS HAVE KEPT
00:55:26GROWING ON MY INJURIES, AND THE
FINANCIAL STRAIN IS HORRIBLE ON
00:55:30MY FAMILY.
IT IS HARD ON MY PARENTS, HARD
00:55:34ON ME.
IT HAS BEEN HARD ON MY FAMILY.
00:55:38>> THANK YOU.
TURNING TO OUR MEDICAL
00:55:43PROFESSIONALS, CERTAINLY, TBI
AFFECTS PEOPLE IN A VARIETY OF
00:55:48CIRCUMSTANCES, DIFFERENT AGES,
DIFFERENT GENDERS.
00:55:52HOW SERIOUS IS TBI AS A PUBLIC
HEALTH ISSUE?
00:55:56DR. BOGNER?
>> MILLIONS OF AMERICANS ARE
00:56:02LIVING WITH THE TRAUMATIC BRAIN
INJURY.
00:56:03MANY OF THESE FOLKS ARE LIVING
WITH COGNITIVE, PHYSICAL, AND
00:56:12EMOTIONAL DEFICITS BECAUSE OF
THE BRAIN INJURY.
00:56:15THOSE DEFICITS WILL OFTEN
RESULTS IN UNEMPLOYMENT,
00:56:20INABILITY TO LIVE INDEPENDENTLY,
PROBLEMS WITH RELATIONSHIPS WITH
00:56:24OTHERS.
THEY CAN HAVE A DEVASTATING
00:56:27EFFECT ON A PERSON.
THEY CAN ALSO LEAD TO OTHER
00:56:31HEALTH CONDITIONS.
IT CAN LEAD TO DEPRESSION,
00:56:35SUBSTANCE ABUSE PROBLEMS,
WORSENING SUBSTANCE ABUSE
00:56:37PROBLEMS, A DEGENERATIVE
DISORDER CAN DEVELOP.
00:56:44INDEED, IT IS A HEALTH CONDITION
THAT AFFECTS THE WIDER PUBLIC
00:56:52AND FAMILY MEMBERS OF THE PEOPLE
WHO SUSTAIN INJURIES.
00:56:54>> DR. SIDDIQUI?
>> IN DIFFERENT CIRCUMSTANCES,
00:57:08FROM THE IRAQI AND AFGHANISTAN
WAR, CIVILIANS ALSO HAVE A BRAIN
00:57:13INJURY, AND THE NUMBER ONE IS
ALCOHOL AND SUBSTANCE ABUSE,
00:57:19ESPECIALLY TEENAGERS WHO ARE
DRINKING AND DRIVING, HAVE AN
00:57:24ACCIDENT, AND HEAD INJURIES.
A HEAD INJURY CAN OCCUR FROM
00:57:31BIRTH ONWARD.
ALSO, HEAD INJURIES IN THE
00:57:42ELDERLY POPULATION, ESPECIALLY
PATIENCE WITH ALZHEIMER'S,
00:57:47DEMENTIA, AND PARKINSON'S
DISEASE.
00:57:50SOMETIMES WE DIAGNOSE THE
DEMENTIA OR PARKINSON'S DISEASE
00:57:54BECAUSE O-- THE SPAN OF THE
PRIN -- SCAN OF THE BRAIN -- IT
00:58:10IS TREATABLE.
IN TERMS OF PUBLIC HEALTH, 5
00:58:13MILLION AMERICANS --
[UNINTELLIGIBLE]
00:58:19THIS AREA IS VERY UNDERFUNDED BY
THE GOVERNMENT AND INSURANCE
00:58:23COMPANIES.
WHEN THEY GO TO THE HOSPITAL,
00:58:28THE PATIENTS ARE DISCHARGED IN A
HURRY, AND ARE DISPLACED IN
00:58:33NURSING HOME.
THEY DO NOT GET ANY -- I WOULD
00:58:43STRONGLY URGE THE GOVERNMENT
OFFICIALS OVER HERE TO LOOK INTO
00:58:47IT SO THAT THIS AREA OF
REHABILITATION OF TRAUMATIC
00:58:50BRAIN INJURY GET SOME DECENT
FUNDING.
00:58:55>> AS DR. BOGNER MENTIONED,
APPROXIMATELY 1.7 MILLION
00:59:03AMERICANS SUSTAIN A TRAUMATIC
BRAIN INJURY ANNUALLY.
00:59:061/3 OF THE POPULATION DOES NOT
SURVIVE THE BRAIN INJURY.
00:59:14WHEN YOU LOOK AT THE POPULATION
S, THE HIGHEST INCIDENCE OF FOUR
00:59:22MALES IS AGES 45 TO 54 .
THESE ARE PRIME EARNING YEARS,
00:59:31AND GENERALLY WHEN THE FAMILY
HAS TEENAGERS, STUDENTS ON THEIR
00:59:35WAY TO COLLEGE, AND SO FORTH.
THE IMPACT ON THE SOCIAL
00:59:38STRUCTURE OF THE FAMILY IS VERY
SEVERE.
00:59:42THE HIGHEST INCIDENCE FOR WOMEN
IS BETWEEN THE AGES OF 65 AND
00:59:4775.
NOW YOU LOOKING AND AN ELDERLY
00:59:52PERSON WITH EXTREME NEEDS FOR
LONG-TERM CARE OF IT PUTTING
00:59:58DEMANDS ON FAMILY STRUCTURE.
THE MOST AT-RISK POPULATIONS
01:00:03ARE 0 TO 4 YEARS OLD, TEENAGERS,
DRIVING AND RIDING IN CARS, AN
01:00:13ELDERLY, AS DR. SIDDIQUI
MENTIONED IT TO PUTTING STRAINS
01:00:21ON THE FINANCING SYSTEM.
THE IMPACT IS VERY PERVASIVE AND
01:00:32VERY BROAD.
WHEN YOU THINK THAT THE
01:00:34INCIDENCE OF 1.7 MILLION
AMERICANS IS GREATER THAN THAT
01:00:40OF BREAST CANCER, AIDS, AND
MULTIPLE SCLEROSIS,, IT GIVES
01:00:46YOU SOME SORT OF IDEA OF HOW
GREAT A PROBLEM OF TBI IS.
01:00:51>> I WOULD LIKE TO DIRECT
ANOTHER QUESTION TO OUR MEDICAL
01:00:55EXPERTS AT THIS TIME.
WHAT STRATEGIES OR TREATMENT
01:00:59PLANS HAVE YOU FOUND FOR
HELPING PATIENTS RECOVER?
01:01:05DR. BOGNER, IF WE COULD BEGIN
WITH YOU, PLEASE.
01:01:10>> IN PART, IT DEPENDS ON THE
INJURY OF THE PERSON.
01:01:16FROM THE MILD TO THE MORE
SEVERE INJURIES, THE NUMBER ONE
01:01:26STRATEGY IS TO HELP THE
LIVESTOCK.
01:01:29GETTING ENOUGH SLEEP,
NUTRITION, AVOIDING A LOT OF
01:01:32ALCOHOL AND DRUGS.
BE SURE THAT YOU ARE TAKING CARE
01:01:36OF YOURSELF.
IT CAN MAXIMIZE 1'S RECOVERY
01:01:39FROM TRAUMATIC BRAIN INJURY.
FOLKS WITH MORE AS IF WE'RE --
01:01:45MORE SEVERE INJURIES,
REHABILITATION CAN HELP.
01:01:53BEING ABLE TO LEARN HOW TO
REGULATE YOURSELF AGAIN, BEING
01:01:59ABLE TO SELF-MONITOR AND CONTROL
WHAT YOU SAY AND HOW YOU DO
01:02:04THINGS.
THOSE ARE THE KINDS OF
01:02:06STRATEGIES THAT YOU LEARN FROM
REHABILITATION.
01:02:10BUT ALSO FOR FOLKS WITH A MORE
MODERATE INJURIY, IT IS TAKING
01:02:19ONE DAY AT A TIME, AND NOT DOING
TOO MUCH.
01:02:22YOU NEED TO GIVE YOURSELF TIME,
GIVE YOURSELF THE REST, AND WORK
01:02:29WITH YOUR FAMILY AND OTHERS IN
ADJUSTING TO CHANGES YOU
01:02:32EXPERIENCE.
>> DR. SIDDIQUI?
01:02:37>> TREATMENT OF HEAD INJURIES
CAN BE DIVIDED INTO TWO
01:02:42CATEGORIES.
ACUTE HEAD TRAUMA -- THE
01:02:48TREATMENT WILL BE REFERRING THEM
TO NEURO-SURGICAL TEAMS.
01:02:54NO. 2 IS MILD TRAUMATIC BRAIN
INJURIES CAN DIVIDE THE THREE
01:03:02MEN INTO, LOT AG -- CAN DIVIDE
THE TREATMENT INTO
01:03:07PHARMACOLOGICAL TREATMENT -- THE
PATIENT IS COMPLAINING OF
01:03:12HEADACHES, YOU TREAT THE
HEADACHES.
01:03:14IF THERE IS A BLACKOUT, YOU
TREAT THAT.
01:03:18WE TREAT DIZZINESS, SLEEP
DISORDER, MOOD DISORDERS.
01:03:24YOU CAN GET MEDICATION FOR
ANXIETY AND DEPRESSION, A MAJOR
01:03:30PART OF ALL THESE INJURIES.
WE HAVE A SPEECH AND LANGUAGE
01:03:35THERAPY FOR SURVIVORS WHO HAVE
WEAKNESS AND A SPEECH PROBLEM.
01:03:42VOCATIONAL REHABILITATION,
THERAPY FOR POSTTRAUMATIC STRESS
01:03:50DISORDER, AND LIKE JENNIFER
ALREADY MENTIONED, COGNITIVE
01:03:58THERAPY.
THERAPY, THERAPY, THERAPY.
01:04:05THERAPY IS THE MAIN THING.
WE HAVE HEARD FROM SURVIVORS
01:04:10THAT SUPPORT IS SO IMPORTANT.
PATIENTS WHO HAVE A GOOD FAMILY
01:04:14SYSTEMS, GOOD WIVES AND MOTHERS,
MAKE MUCH SOONER RECOVERIES.
01:04:22IN TERMS OF TREATMENT, I WOULD
EMPHASIZE THERAPY AS NUMBER ONE.
01:04:28YOU CAN ALWAYS TREAT SYMPTOMS
LIKE HEADACHES AND DIZZINESS.
01:04:32>> ONE OF THE THINGS THAT
EMERGED IN THE NEEDS ASSESSMENT
01:04:38IN OHIO THAT WAS DONE RECENTLY
WAS ADDRESSING JUST THAT ISSUE
01:04:42OF EMOTIONAL SUPPORT FOR THE
INDIVIDUAL WHO IS SUFFERING THE
01:04:48INCIDENT, AND ALSO THE FAMILY.
IN FACT, THE FAMILY RIGHT
01:04:55EMOTIONAL SUPPORT AS THE NO. 1
AT NEED THAT THEY HAD IN MEETING
01:04:59THE CHALLENGES OF A TRAUMATIC
BRAIN INJURY.
01:05:03ASIDE FROM ALL
THANK YOU.
01:05:12I WOULD LIKE TO TURN AGAINST HIM
BY SURVIVORS AND COMBINE A
01:05:18COUPLE OF THE QUESTIONS.
BEGINNING WITH CHARLIE, WHAT
01:05:23STRATEGIES OR THERAPIES HAVE
BEEN THE MOST EFFECTIVE IN
01:05:27HELPING YOU RECOVERED, AND WHAT
ULTIMATE OUTCOME TO YOU SEE
01:05:33YOURSELF HAVING FROM TBI?
>> I HAVE TO SAY THERE WAS NOT
01:05:45MUCH KNOWN ABOUT TBI WHEN I
SUFFERED MIND.
01:05:49-- MINE.
I AM SORRY TO SAY WE DID NOT
01:05:57HAVE A SPEECH THERAPIST AT THE
NAVAL OFFICER IN GREAT LAKES IN
01:06:031971, BUT I HAD A POOR GUY THAT
WAS A QUADRIPLEGIC.
01:06:09HE WAS NOT GOING ANYWHERE, SO I
WOULD OIL MY CHAIR UP NEXT TO
01:06:14HIS BED.
-- WHEEL MY CHAIR UP NEXT TO
01:06:21HIS BED.
HE WOULD HAVE TO TALK TO ME ALL
01:06:24DAY.
[LAUGHTER]
01:06:26OUR PHYSICAL THERAPIST AT THE
NAVAL HOSPITAL WAS PROBABLY THE
01:06:34GREATEST PERSON THAT I HAVE EVER
ENCOUNTERED.
01:06:36I WAS SCHEDULED ONE HOUR A DAY,
THREE DAYS A WEEK.
01:06:43I WAS THERE WHEN THEY OPENED
UP, THERE WHEN THEY CLOSED FIVE
01:06:48DAYS A WEEK, AND HE WAS COMING
IN ON SATURDAYS, AND SOMETIMES
01:06:54THEY WOULD TIE ME UP AND TRY TO
MAKE ME GET AWAY, BUT THAT WAS
01:07:00MY THERAPY.
OTHER THAN THAT, I THINK
01:07:07LIFELONG WORKING OUT, BUT
MENTALLY AS WELL AS PHYSICALLY,
01:07:14TRYING DIFFERENT THINGS.
I GUESS IT WAS 30 YEARS BEFORE I
01:07:21KNEW THERE WAS A BRAIN INJURY
GROUP, THE BRAIN INJURY
01:07:26ASSOCIATION.
I CANNOT STRESS MORE THAT IF THE
01:07:38NEW VETERANS WOULD HOOK UP WITH
THE OHIO BRAIN INJURY GROUP,
01:07:45THEIR LOCAL BRAIN INJURY GROUP,
IT IS REALLY HIGH-OPENING.
01:07:49IT REALLY HELPS TO UNDERSTAND --
EYE-OPENING.
01:07:55IT REALLY HELPS TO UNDERSTAND
OUR INJURY, AND THE OUTCOME, TO
01:08:02SEE FOR YOURSELF, WHAT YOU SEE
IS WHAT YOU ARE GOING TO GET.
01:08:06AT 65, I AM JUST GOING TO
CONTINUE ON AND HOPE FOR THE
01:08:13BEST.
>> THANK YOU, CHARLIE.
01:08:15MATTHEW?
>> I HAD A LOT OF PHYSICAL,
01:08:32FACIAL AND SPEECH THERAPY TO
HELP ME READ LEARN HOW TO DO
01:08:37THINGS AGAIN.
THE THING I NEEDED THE MOST AND
01:08:42STILL NEED THIS TO THE -- HELP
TO THINK AND LEARNED WITH MY
01:08:50INJURED BRAIN.
THEY CALL THAT COGNITIVE
01:08:54THERAPY.
WHEN GREAT KIND OF COGNITIVE
01:08:57THERAPY -- 1 GREAT KIND OF
COGNITIVE THERAPY I HAD WAS AT A
01:09:03PLACE IN OMAHA, NEB., CALLED
QLI.
01:09:07MY MOM CAN EXPLAIN THAT.
>> AT THIS PLACE, TWO AND HALF
01:09:16YEARS POST-INJURY, HE HAD HAD
THERAPY TO REGAIN THE NORMAL
01:09:22SKILLS, BUT HAD REACHED THE
POINT OF WHERE -- HERE I AM, BUT
01:09:30NOW WHAT?
QLI USED ERROR-FREE LEARNING
01:09:36WHICH TURNED OUT TO BE ONE OF
THE MOST PRACTICAL WAYS TO DEAL
01:09:40WITH THEM ACROSS THE BOARD.
MATTHEW HAD DIFFICULTY WITH
01:09:45SEQUENCING.
HE REMEMBERED HOW TO BRUSH HIS
01:09:48TEETH, BUT HE MIGHT TURN ON THE
WATER, PUT AWAY THE TOOTHBRUSH
01:09:55-- THE SEQUENCING WAS NOT THERE.
HE WOULD GET FRUSTRATED.
01:09:59WE WANTED TO HELP HIM, BUT WE
DID NOT KNOW HOW.
01:10:02AT QLI BAY BROKE DOWN THE TASKS
INTO -- THEY BROKE DOWN THE
01:10:10TASKS INTO BRITAIN STEPS AND
THE ASSISTANT -- WRITTEN STEPS,
01:10:17AND THE ASSISTANT WOULD WORK
WITH HIM THROUGH EACH STEP.
01:10:20THEY TAUGHT ME THAT SOMETHING
YOU DO THAT AS EMOTION ATTACHED
01:10:24WITH IT IS MORE LIKELY TO BE
REMEMBERED.
01:10:28THE MOTION THAT GOES WITH DOING
SOMETHING WRONG ESPECIALLY BUT
01:10:33BRAIN INJURY IS FRUSTRATION AND
ANGER.
01:10:37HE WOULD MORE REMEMBER DOING IT
ANGRILY.
01:10:42HE WOULD TRY THE FIRST STEP,
THEN THE STAFF WOULD STEP IN AND
01:10:53DO STEP TWO UNTIL MATTHEW WAS
ABLE TO ACCOMPLISH ALL 10 ON HIS
01:10:59OWN, WHICH HAS GONE AND TO THE
POINT WHERE HE IS NOW,
01:11:04INDEPENDENT BEYOND WHAT ANYONE
EXPECTED TALKATIVE THERAPY, --
01:11:12EXPECTED.
CONATIVE THERAPY HAS ADVANCED
01:11:17BEYOND WHAT WAS THOUGHT.
THEY TOLD ME FIVE YEARS EARLIER
01:11:26HE NEVER WOULD HAVE SEVERED --
SUFFERED THE LEVEL OF INJURY.
01:11:32MOST INSURANCE COMPANIES DO NOT
COVER TENTATIVE THERAPY BECAUSE
01:11:36IT FALLS UNDER SPEECH -- TALKED
INTO THERAPY, BECAUSE IT FALLS
01:11:41UNDER SPEECH -- TALK CLINTON'S
-- COGNITIVE THERAPY, BECAUSE IT
01:11:52FALLS UNDER SPEECH THERAPY.
WITH THE FAMILY, THOSE OF US WHO
01:11:58BEEN IN THE -- WHO HAVE BEEN IN
THE CARE GIVER ASSOCIATION, WE
01:12:05CALL WHAT WE HAVE TBI BY
ASSOCIATION.
01:12:10YOU HAVE TO DEAL WITH SOMETHING
THAT IS SO DIFFERENT.
01:12:13YOUR MIND IS IN A DIFFERENT
PLACE BRAIN INJURY DOES NOT COME
01:12:20BACK 100%.
HIS COMPUTER WAS TO REBUILD IT,
01:12:25BUT NOT EVERY PROGRAM STARTED
OUT BY --.
01:12:29DILUTED, BUT NOT EVERY PROGRAM
STARTED UP AGAIN.
01:12:31YOU NEED TO WORK WITH THE FAMILY
MEMBER TO UNDERSTAND THEY ARE
01:12:38OVERWHELMED AND THEY ARE ALSO
DEALING WITH GRIEF.
01:12:41YOU HAVE TO CELEBRATE THE FACT
YOU HAVE YOUR LOVED ONES STILL,
01:12:46BUT HAD SINCE THE SEE THAT THE
DREAMS WE EXPECTED FOR HIM HAD
01:12:53TO BE THE SAME.
I WANT TO SAY THAT WHEN DEALING
01:13:01WITH RAW EMOTION YOU DO NOT
UNDERSTAND THAT THEY ARE ALIVE,
01:13:06YOU SHOULD BE HAPPY.
>> AS FAR AS AN OUTCOME, BEYOND
01:13:12TODAY, I'M SURE A LOT OF THERAPY
IS CONTINUING?
01:13:16>> THAT IS ONE OF THE THINGS
WE'VE LEARNED.
01:13:19MEDICAL SCIENCE CANNOT GIVE YOU
ALL THE ANSWERS.
01:13:23IF THEY HAVE TO BE CAUTIOUS.
THEY CANNOT PROMISE YOU THAT HE
01:13:28WILL BE BACK TO NORMAL.
AS WE LEARNED MORE, WHEN HE WAS
01:13:32INJURED IN 2004, THEY GAVE HIM
PROGRESS FOR ALMOST A YEAR, THEN
01:13:40THEY EXTENDED IT, AND NOW HE
CONTINUALLY MAKES PROGRESS.
01:13:42THE BENEFIT OF BEING IN THE
MILITARY, THEY ALREADY HAVE
01:13:48THAT DO NOT QUICK MENTALITY.
HE DID NOT LAY AROUND AT WALTER
01:13:53REED.
I THINK THAT NEEDS TO BE
01:13:58STRESSED ACROSS THE BOARD SO
THAT THE OUTCOME CAN BE -- AS HE
01:14:07WOULD START A SENTENCE WITH I
CAN NOT, HE WOULD HAVE TO END A
01:14:13SENTENCE WITH YET.
THAT WAS OUR DEAL.
01:14:18>> I STILL HAVE ALL OF THE HOPES
AND DREAMS THAT I HAD BEFORE I
01:14:33GOT HURT, INJURED.
I WANT TO GET MARRIED AND HAVE
01:14:40CHILDREN.
RIGHT NOW, I STILL HAVE TO WORK
01:14:44ON LEARNING TO DO THINGS ON MY
OWN, AND TO GET MORE
01:14:51INDEPENDENT.
>> THANK YOU, MATTHEW.
01:14:54PAM?
>> FIRST OF ALL, I AM GRATEFUL
01:15:02I HAVE A TBI.
I TELL PEOPLE THAT ALL THE TIME.
01:15:05THERE ARE A LOT OF REASONS.
MAINLY IT IS BECAUSE I WOULD NOT
01:15:10HAVE THE PEOPLE IN MY LIFE THAT
I DO.
01:15:13I AM VERY HAPPY.
WE SAW LIKE WE ARE ALL DEPRESSED
01:15:18AND STUFF, BUT I HAVE TO TELL
YOU, IF YOU RODE DOWN WITH US,
01:15:24MATT AND I SAID IN THE FRONT
SEAT.
01:15:27THAT IS FUN.
ONE TBI DRIVER HELPING ANOTHER
01:15:31AND THE SEC IS IN THE BACKSEAT.
WE HAVE A LOT OF FUN WITH THIS.
01:15:36-- LISA IS IN THE BACKSEAT.
WE HAVE A LOT OF FUN WITH THIS.
01:15:41WHEN WE ARE HAVING DINNER AND I
SAY PLEASE TEST THE TEETH, AND
01:15:46EVERYBODY STARTS GIGGLING, I SAY
WHAT DID MOM SAID.
01:15:51U.S. TO HAVE FUN WITH IT.
THAT IS STILL IN -- YOU HAVE TO
01:15:57HAVE FUN WITH IT.
THAT IS SO IMPORTANT.
01:16:00MATTHEW TALK ABOUT HOPES AND
DREAMS.
01:16:03I VOLUNTEER WITH MY ORGANIZATION
AND I HAVE A HOPE AND DREAM THAT
01:16:09THEY BE ABLE BE A REAL JOB ONE
DAY.
01:16:12I CANNOT WORK FULL TIME OR A LOT
PART-TIME BECAUSE THE WAY I'D
01:16:19WORK, LIKE I TOLD OUR
CONGRESSWOMAN, I SAID I'D DO A
01:16:24LOT OF WORK IN MY PAJAMAS.
SHE SAID I DO NOT CARE HOW YOU
01:16:29GET IT DONE.
YOU ARE GETTING IT DONE.
01:16:31EMPLOYERS NEED TO UNDERSTAND
THAT.
01:16:34WE HAVE PASSION, A GOOD THINGS
TO GIVE, DRIVE, LEADERSHIP.
01:16:40WE FACED DEATH.
THOSE ARE POSITIVE QUALITIES TO
01:16:44BRING TO EMPLOYERS, BUT THEY
HAVE TO MAYBE HAVE THEIR
01:16:48WORKPLACE STRUCTURE COMPENSATED
FOR A LITTLE BIT DIFFERENTLY.
01:16:55I'M A MOTHER OF FOUR, A
GRANDMOTHER OF SIX, AND I AM
01:17:00ALIVE TO SEE THOSE BABIES AND TO
HELP VETERANS AND FAMILIES, AND
01:17:04I WANT TO GROW MY ORGANIZATION
TO BE IN EVERY STATE.
01:17:10I WANT VETERANS TO BE ABLE TO
KNOW THE FIRST PLACE THEY CAN GO
01:17:16TO FIND THE ANSWERS AND ALL OF
THE SERVICE PROVIDERS COULD HAVE
01:17:22SERVICES USED MORE BECAUSE THAT
IS A COMPLAINT I HEAR.
01:17:25WE HAVE THIS BIG BUILDING, ALL
THIS MONEY, AND NOBODY COMES TO
01:17:31US.
I HOPE TO SEE THAT CONNECTION
01:17:33FOR THEM.
BY OUTCOME, YOU KNOW, I AM A
01:17:39SINGLE WOMAN, AND I AM OK WITH
THAT, AND I HAVE TO FIND SOMEONE
01:17:44ELSE, BUT BOY IS HE GOING TO BE
A SPECIAL GUY.
01:17:49>> THANK YOU.
SAMANTHA?
01:17:52>> ONE OF THE MOST EFFECTIVE
THERAPIES HAS BEEN FISCAL BUDGET
01:17:58PHYSICAL THERAPIES.
IT TOOK ME AWHILE -- PHYSICAL
01:18:04THERAPY.
IT TOOK ME AWHILE.
01:18:06I STILL TAKE PHYSICAL THERAPY.
WE'D JUST HANG OUT AND DO WHAT
01:18:15WE DO.
SHE IS ALSO VERY NICE TO TALK
01:18:20TO.
SHE HAS BEEN WITH ME FROM THE
01:18:23GET-GO.
HAVING THE SAME THERAPIST FOR ME
01:18:27HAS BEEN VERY NICE.
ALSO, SPEECH THERAPY, I STARTED
01:18:34ONCE WE FOUND OUT IT WAS A
TRAUMATIC BRAIN INJURY, AND I
01:18:39TOOK SPEECH THERAPY FOR ABOUT
ONE YEAR.
01:18:43I FOUND DIFFERENT STRATEGIES TO
HELP ME REMEMBER THINGS.
01:18:47ANOTHER GREAT THERAPY, SEEING A
PSYCHOLOGIST HAS HELPED A LOT,
01:18:57TOO.
MY SERVICE DOG HAS BEEN A
01:19:02BLESSING.
I DO NOT KNOW WHAT I WOULD DO
01:19:06WITHOUT HIM.
HE IS THERE WITH ME WHEN I'M BY
01:19:09MYSELF.
HE IS STAYING WITH ME ALL THE
01:19:14TIME.
HE HELPS A LOT.
01:19:17THE OUTCOME FROM MY INJURY IS I
THINK I HAVE COME A LONG WAY
01:19:21FROM ALMOST EIGHT YEARS FROM
TOMORROW, WHICH WILL BE MY
01:19:27ANNIVERSARY.
I'M VERY PROUD OF HOW FAR I
01:19:31HAVE COME.
I AM A BETTER PERSON FOR GOING
01:19:34THROUGH WHAT I HAVE GONE THROUGH
WITH IT.
01:19:37IT HAS MADE ME A STRONGER
PERSON.
01:19:40I DO NOT REGRET THE INJURY NOW.
I'M VERY GRATEFUL FOR HAVING IT.
01:19:46IT HAS GIVEN ME CERTAIN
OPPORTUNITIES I WOULD HAVE NEVER
01:19:50HAD, HAD IT NOT HAPPENED.
I WOULD ALSO LIKE TO BECOME MORE
01:19:56OF AN ADVOCATE.
I WOULD LOVE TO BE A
01:20:00MOTIVATIONAL SPEAKER AND
CONTINUE TO WORK WITH THE BRAIN
01:20:04INJURY OF ALL -- BRAIN INJURY
ASSOCIATION OF OHIO.
01:20:07THAT IS MY OUT COMPARED >> THANK
YOU OUR FINAL -- OUTCOME.
01:20:15>> THANK YOU.
OUR FINAL PANEL QUESTION
01:20:18CONCERNS HOUSE BILL 143.
THIS IS A BILL SAM TESTIFIED IN
01:20:24SUPPORT OF.
I WOULD LIKE TO POSE THIS TO SAM
01:20:30AND MEDICAL PROFESSIONALS
BEGINNING WITH DR. BOB IGER.
01:20:34COULD YOU TELL US THE MAIN
PROVISIONS OF THE -- DR.
01:20:38BOEHNER -- BOGNER.
COULD YOU TELL US THE MAIN
01:20:49PROVISIONS?
>> I SUPPORT THIS BILL BECAUSE I
01:20:54STILL GET THE PRESS CONFERENCE
TO INTRODUCE EIGHT, AND NOT
01:21:00ALLOWING ATHLETES TO RETURN TO
PLAY FAIR SIGNS OF A CONCUSSION.
01:21:05IT IS BRILLIANT LEGISLATION.
HAD THIS BEEN AROUND WHEN I WAS
01:21:10PLAYING, MAYBE IT WOULD NOT HAVE
HAPPENED TO ME, AND I DO NOT ONE
01:21:15OTHER PATH LEADS TO GO THROUGH
WHAT I'VE GONE THROUGH.
01:21:19--- ATHLETES GO THROUGH WHAT I
HAVE GONE THROUGH.
01:21:26>> THANK YOU.
DR. BOGNER?
01:21:34>> THE MOST IMPORTANT PART OF
THE BILL IS A QUALIFIED HEALTH
01:21:39PROFESSIONAL NEEDS TO SIGN OFF
BEFORE A KID GOES BACK INTO
01:21:43PLAY.
UNFORTUNATELY, KNOWING WHEN IT
01:21:46IS SAFE TO GO BACK INTO PLAY,
WE'RE STILL FIGURING THAT OUT,
01:21:50THE WE'RE FORTUNATE WE HAVE
SOMEONE WHO DOES THE MEDICAL
01:21:55BACKGROUND TO MAKE THOSE
DECISIONS.
01:21:57IT ALSO JUST AS IMPORTANT THE
BILL ALSO PROVIDES THAT FAMILY
01:22:03MEMBERS, COACHES AND HEALTH
PROFESSIONALS WORKING WITH THE
01:22:07KIDS ARE ALL AWARE THAT A
CONCUSSION HAPPENED AND THE
01:22:11SIGNIFICANCE OF THE CONCUSSION
WILL BE HELD WITH -- HELP WITH
01:22:17THIS BILL.
THE PARENTS NEED TO BE INFORMED
01:22:21THE COACHES' NEED TO HAVE
EDUCATION ABOUT CONCUSSIONS.
01:22:23THESE THINGS ARE ALL IMPORTANT
BECAUSE EVERY KID NEEDS TO
01:22:33REALIZE THE SIGNIFICANCE THE
CONCUSSION COULD HAVE.
01:22:36>> THANK YOU.
DR. SIDDIQUI?
01:22:39>> ONE OF THE MOST IMPORTANT
PART OF THE BILL IS DEAD COACHES
01:22:46THE DECIDE -- BILL IS THAT
COACHES THAT DECIDE TO SEND
01:22:51KIDS BACK, IT IS IMPORTANT
BECAUSE THERE WILL NOT BE ANY
01:23:00CIVIL LAWSUITS AGAINST THEM FOR
THIS DECISION.
01:23:05I THINK IT IS VERY IMPORTANT,
BUT IT IS IMPORTANT FOR THE
01:23:10COACHES AND REFEREES TO BE
TRAINED AND RECOGNIZE THE
01:23:13SYMPTOMS OF CONCUSSIONS AND HEAD
TRAUMA.
01:23:17>> THANK YOU.
STEPHANIE?
01:23:20>> WHEN YOU THINK ABOUT OVER
2002 THROUGH 2009, EMERGENCY
01:23:30VICTIM'S -- VISITS WITH ATHLETES
UNDER THE AGE OF 19 INCREASED,
01:23:35WHICH GIVES INDICATION THAT THIS
IS A SERIOUS PROBLEM AND IT IS
01:23:41RECOGNIZED MORE, WHICH IS A GOOD
THING.
01:23:44THERE WAS A SPORTS CULTURE.
THERE STILL IS A SPORTS CULTURE
01:23:49THAT SAYS YOU SHAKE IT OFF, IN
THERE, AND KEEP PLAYING.
01:23:54NOW, BECAUSE OF THE EMPHASIS ON
EDUCATION FOR BOTH OF THE
01:24:00PARENTS, PARENTS WILL RECEIVE
INFORMATION ON CONCUSSIONS IN
01:24:06SPORTS PRIOR TO THE CHILD'S
PARTICIPATION.
01:24:09THE COACHES MUST TAKE A COURSE
BY THE OHIO DEPARTMENT OF
01:24:16HEALTH, AVAILABLE ONLINE, AND
THE PARENTS NEED TO SIGN THE
01:24:23CARE RECEIVED THE INFORMATION
AND THEY NEED TO UNDERSTAND THE
01:24:25PROTOCOL -- SIGN THAT THEY HAVE
RECEIVED THIS INFORMATION, AND
01:24:33THAT THEY UNDERSTAND THE
PROTOCOL.
01:24:35A CHILD SHOWS SIGNS, THEY MUST
BE REMOVED FROM PRACTICE OR
01:24:41PLAY AND THEY WILL NOT BE ABLE
TO RETURN UNTIL THEY HAVE THE
01:24:43MEDICAL AND INSURANCE.
IT IS A TREMENDOUSLY PRACTICAL
01:24:48APPROACH FOR THE CHILD, THE
COACH AND THE PARENTS, AND NO
01:24:53OPPORTUNITY TO CHANGE OUR MIND
SET, OUR SPORTS CULTURE.
01:24:58IT IS NOT JUST FOOTBALL.
CHEERLEADING, SOCCER, THEY'RE
01:25:04ALL INVOLVED UNDER THIS BILL.
IT IS A GREAT THING.
01:25:09IT PASSED BY SOMETHING LIKE 84-2
IN THE HOUSE.
01:25:14NOW IT HAS BEEN PRESENTED AND IS
UNDER CONSIDERATION IN THE
01:25:21COMMITTEE ON HEALTH AND HUMAN
SERVICES AND AGING.
01:25:24PLEASE LOOK INTO IT.
IN TOUCH WITH MEMBERS OF THE
01:25:27COMMITTEE.
YOU CAN FIND IT GET IN TOUCH
01:25:31WITH MEMBERS OF THE COMMITTEE.
-- GET IN TOUCH IS BUT MEMBERS
01:25:35OF THE RICH GET IN TOUCH -- GET
IN TOUCH WITH MEMBERS OF THE
01:25:42COMMITTEE.
>> THANK YOU.
01:25:45I WOULD LIKE TO ASK OUR
PANELISTS TO MAKE ONE FINAL
01:25:48COMMENT.
STEPHANIE?
01:25:50>> THANK YOU.
IT IS A PRIVILEGE TO BE HERE,
01:25:55AND ALL OF US HAVE BEEN MOVED
AND RECOGNIZED OF VALOR FOR THE
01:26:03INDIVIDUALS AND THEIR FAMILIES
WHO HAVE FACED TRAUMATIC BRAIN
01:26:06INJURY.
ANYONE THAT I'VE MET WHO WAS
01:26:11BEEN INVOLVED WITH TRAUMATIC
BRAIN INJURY HAS TENDED TO BE
01:26:13VERY PASSIONATE ON THE SUBJECT.
I THINK WE SEE THAT TODAY, AND
01:26:19IT IS A PASSION THAT HAS MADE
GOOD THINGS HAVE BEEN.
01:26:23>> DOCTORS IN THE KEY?
>> IT IS AN HONOR FOR ME TO --
01:26:27DR. SIDDIQUI?
>> IT IS AN HONOR FOR ME TO BE
01:26:33HERE, AND I THINK IT IS
IMPORTANT THAT WE NEED EVERY
01:26:36YEAR TO DISCUSS TRAUMATIC BRAIN
INJURY SIT AND GET MORE PUBLIC
01:26:41AND VETERANS INVOLVEMENT.
>> IN ALL, WHEN I FIRST STARTED
01:26:44IN THIS FIELD 20 YEARS AGO TBI
WAS CALLED A SILENT EPIDEMIC.
01:26:51OFTENTIMES PEOPLE DID NOT KNOW
THEY HAD ONE OR THAT THEIR
01:26:55NEIGHBOR HAD ONE.
NOW, WE DO HAVE A GREATER
01:26:59AWARENESS OF THAT.
UNFORTUNATELY IT CAME ABOUT IN
01:27:04NO WAY THAT NONE OF US WERE
AWARE OF THE WAY IT HAPPENED.
01:27:12FORTUNATELY, WE ARE AWARE OF
WHAT IT IS.
01:27:18UNFORTUNATELY, WE STILL DO NOT
HAVE THE SERVICES THAT WE NEED
01:27:21TO HELP FOLKS WITH TRAUMATIC
BRAIN INJURY.
01:27:25WE DO NOT HAVE SUFFICIENT FUNDS.
WHEN FOLKS LEAVE THE HOSPITAL
01:27:30ENVIRONMENT, THEY ARE FACED WITH
A FRAGMENTED MAZE OF SERVICE
01:27:36WHERE THEY CAN NEVER REALLY GET
THE SERVICES THAT THEY NEED.
01:27:38WE NEED TO HAVE THAT.
>> THANK YOU.
01:27:42SAM?
>> I ALSO AM VERY HONORED AND I
01:27:49WAS ASKED TO BE HERE AND BE PART
OF THIS PANEL.
01:27:54I THINK MY FINAL THING IS THE
WHERE OF CONCUSSIONS.
01:27:57CONCUSSIONS ARE JUST AS
DANGEROUS AS ANYTHING ELSE, ANY
01:28:03OTHER TYPE OF INJURY.
DID NOT RETURN TO PLAY -- DO NOT
01:28:11RETURN TO PLAY IF YOU ARE DAZED.
TRUST ME, IT IS NOT WORTH IT.
01:28:16>> THANK YOU.
>> PAM?
01:28:19>> I WANTED THANK YOU TO THE
DEPARTMENT FOR HAVING ME ON THE
01:28:25PLAN -- ON THE PANEL.
MY THOUGHTS ARE ON THE EMOTIONAL
01:28:32SIDE OF BRAIN INJURY.
THE FACT THAT IT IS INVISIBLE TO
01:28:36SOME OF US BECOMES ANOTHER
CHALLENGE BECAUSE WE ARE
01:28:40CONSTANTLY HAVING TO EXPLAIN
OURSELVES.
01:28:43YOU ARE EITHER, OF BEING OUT
THERE, BUSY, OR MAYBE EVEN
01:28:48DRINKING, WHEN IT REALLY IS YOUR
BRAIN INJURY.
01:28:53THE EMOTIONAL SIDE, ONE OF THE
DOCTORS AND THERAPISTS ARE DONE,
01:28:58THAT IS STILL THERE AND PROBABLY
WILL BE THERE FOREVER.
01:29:02IT IS NOT THAT YOU DO NOT COPE,
BUT THERE IS STILL ALWAYS THAT
01:29:08PAIN THAT COMES UP.
THE EMOTIONAL SIDE CANNOT BE
01:29:11IGNORED AT ALL.
AND I'M VERY HONORED TO BE HERE
01:29:15AND TO DRIVE DOWN WITH SOME VERY
SPECIAL FRIENDS OF MINE.
01:29:18>> THANK YOU.
MATTHEW?
01:29:22>> I AM VERY HONORED ALSO.
GO BLUE.
01:29:31[LAUGHTER]
>> I GUESS WE WILL HAVE TO
01:29:39FORGIVE MATTHEW FOR THAT
COMMENT.
01:29:40>> WHEN HE WAS FIRST WAKING UP
BY A BROTHER-IN-LAW SAID THERE
01:29:49IS ONE GREAT THING ABOUT THIS
BRAIN INJURY, HE IS AN OHIO
01:29:56STATE FAN NOW.
IT LASTED FOR A WHILE.
01:29:58THEN HIS OLD MEMORY CAME BACK.
[LAUGHTER]
01:30:02I AM SO HONORED TO BE ASKED TO
HAVE BEEN A PART OF THIS.
01:30:10NO WHITE WE ARE ALL HERE ON THE
PANEL, MEDICAL -- I DO NOT KNOW
01:30:19WHY WE ARE ALL HERE ON THE
PANEL, BUT ALL I CAN SAY IS
01:30:23THANK YOU BECAUSE PEOPLE LIKE MY
SON AND MYSELF NEED TO KNOW THAT
01:30:36PEOPLE CARE AND NEED TO
UNDERSTAND AND NEED TO CARE THAT
01:30:42PEOPLE WITH BRAIN INJURIES DID
THE SAME KIND OF SERVICES THAT
01:30:46OTHER PEOPLE WITH OTHER INJURIES
GET.
01:30:49IT IS NOT MATTHEW'S FAULT THAT
IT WAS HIS BRAIN THAT WAS
01:30:53INJURED.
THERE IS NO PROSPECT, NO TEST,
01:30:59NO DEVICE THAT REPLACES WHAT HE
IS LOST, IN HIS CASE, THE HELP
01:31:06OF ANOTHER PERSON.
THAT IS NOT SOMETHING THAT IS
01:31:10CLEARLY UNDERSTOOD.
WE CARE ABOUT YOU.
01:31:15IT MEANS THE WORLD TO ME.
THE NEXT TIME YOU SEE SOMETHING
01:31:22JOKE ABOUT HIS SLURRED SPEECH OR
WALK, AND THERE HAVE BEEN PEOPLE
01:31:27THAT THINK HE IS VERY DRUNK.
THAT IS NOT THEIR FAULT.
01:31:31THEY DO NOT KNOW, BUT MAYBE THE
NEXT TIME YOU ARE IN LINE AND
01:31:37SOMEONE HAS A SLURRED SPEECH OR
GATE, TRIED TO SAY HELLO TO THEM
01:31:42INSTEAD OF -- TRY TO SAY HELLO
TO THEM INSTEAD OF RUNNING AWAY.
01:31:48>> THANK YOU.
CHARLIE?
01:31:53>> WELL, R.I., TOO, THANK YOU
FOR -- I, TOO, THANK YOU FOR
01:32:07INCLUDING ME ON THIS PANEL AND
MY GUESS -- I GUESS MY LAST
01:32:13COMMENT WOULD BE FOR THE
SURVIVORS.
01:32:17LIFE HAPPENS.
OTHER DISEASES HAVE BEEN, AND
01:32:25YOU STILL LIVE THROUGH IT.
I FOUND AFTER MY CANCER
01:32:30TREATMENT AND THINGS, PEOPLE
WOULD SAY HOW DO YOU DO IT?
01:32:37I SAY ONCE YOU ARE SHOT IN THE
HEAD EVERYTHING ELSE IS
01:32:43INCIDENTAL.
[LAUGHTER]
01:32:45WE HAVE BEEN THROUGH A LOT JUST
TO BE HERE.
01:32:50WHATEVER ELSE THE WORLD THROWS
AT US DOES NOT MEAN A HILL OF
01:32:57BEANS.
THANK YOU.
01:32:59>> HOW ABOUT A ROUND OF APPLAUSE
FOR OUR PANEL?
01:33:02[APPLAUSE]
>> I WOULD LIKE TO BRIEFLY THINK
01:33:17THE OHIO DEPARTMENT
TRANSPORTATION FOR ALLOWING THIS
01:33:23TO USE THIS AUDITORIUM TODAY AND
THANK YOU TO THE OHIO CHANNEL
01:33:28FOR KEEPING THIS EVENT.
I WOULD LIKE TO SAY TOO WIDE TO
01:33:36THE DIRECTOR OF COMMUNICATION
FOR HER TIRELESS -- THANK YOU TO
01:33:41THE DIRECTOR OF COMMUNICATIONS
FOR HER TIRELESS WORK AND BRING
01:33:44IN THIS PANEL TOGETHER.
A TREMENDOUS THANKS TO EVERYONE
01:33:47ON THIS PANEL, AND CHARLIE,
MATTHEW, THANK YOU FOR YOUR
01:33:53SERVICE, THE VETERANS TO YOU,
THANK YOU FOR YOUR SERVICE AND
01:33:58SACRIFICE.
AND TO ALL OF YOU SURVIVORS,
01:34:02YOU ARE NOT ONLY LIVING WITH A
TRAUMATIC CONDITION, YOU'RE
01:34:07STEPPING OUTSIDE OF YOURSELVES
TO SERVE OTHERS, AND THAT REALLY
01:34:11CAME THROUGH IN EVERYTHING THEY
YOU DID AND FOR OUR MEDICAL
01:34:16PROFESSORS AS WELL, -- MEDICAL
PROFESSIONALS, THANK YOU FROM
01:34:21THE BOTTOM OF MY HEART.
I HOPE EVERYBODY HERE HAS
01:34:24ENJOYED THIS.
THANK YOU FOR BEING HERE.
01:34:27WE HOPE YOU LEARNED SOMETHING,
NOT AND DID OF THE DISORDER OF
01:34:31TRAUMATIC BRAIN INJURY, BUT HOW
YOU CAN STEP OUTSIDE OF YOURSELF
01:34:36AND LEARNED TO HELP SOMEONE YOU
KNOW OR DOWN THE STREET FROM
01:34:40YOU WHO IS SUFFERING AND DOING
THEIR BEST, AND YOU CAN STEP
01:34:45OUTSIDE OF YOURSELF TO HELP
THEM.
01:34:46THANK YOU AGAIN FOR BEING HERE,
AND AGAIN, WE HOPE YOU ALL HAVE
01:34:51BEEN VERY GREAT DAY.
THANK YOU.
Note : Transcripts are compiled from uncorrected captions